Evaluation of Web-based Transition Education to Enhance Transition Readiness and Health Service Utilization in Adolescents/Young Adults With Congenital Heart Disease
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 180
- 试验地点
- 1
- 主要终点
- Change in transition readiness score, as measured by transition readiness survey
研究概览
简要总结
The study looks to learn more about the helpfulness of web-based transition education and its effect on transition readiness and health service utilization in the adolescent and young adult congenital heart disease population.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Other
- 盲法
- None
入排标准
- 年龄范围
- 13 Years 至 25 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Diagnosed with congenital heart disease
- •Ages 13-25
- •Routine outpatient cardiology follow-up visit
排除标准
- •New patients to cardiology clinic
- •Patients being evaluated for an acute medical problem
- •Patients who do not speak English
- •Severe neurocognitive impairment that precludes ability to complete the questionnaire
研究组 & 干预措施
Web-based Educational Intervention
This group of participants will be given access to a web-based educational resource in addition to the standard of care.
干预措施: Web-based Educational Intervention (Behavioral)
Standard of Care
This group will be given only the standard of care during their clinic visit.
结局指标
主要结局
Change in transition readiness score, as measured by transition readiness survey
时间窗: baseline, 12 months
The transition readiness survey is used to measure a participant's self-reported knowledge about their health and readiness to take charge of their healthcare. Each item is scored from 1 to 5, where 1 means "No, I do not know how" and 5 means "Yes, I always do this when I need to." The overall score is determined by calculating the sum of all questions on a 100 point scale. A higher score indicates greater readiness for transition.
次要结局
未报告次要终点
研究者
Karen Uzark
Clinical Professor of Cardiac Surgery and Pediatric Cardiology
University of Michigan