NCT07532954招募中不适用
The Impact Of A Patient Support Community On Patients With Neuroendocrine Cervical Cancer: NECC Peer Support
适应症
干预措施
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 40
- 试验地点
- 1
- 主要终点
- Demographic questionnaire
研究概览
简要总结
To learn about the effects of a participant support community on illness perception, emotional well-being, and feelings of isolation among participants with NECC.
详细描述
Primary Objective
1. To assess the impact of a participant support community on illness perception, emotional wellbeing and feelings of isolation among participants diagnosed with NECC.
Secondary Objectives
- To understand how peer support affects communication with healthcare providers.
- To explore how the support community affects coping strategies.
- To evaluate the perceived value and acceptability of the support community structure and delivery.
- To identify unmet needs and challenges experienced by participants with NECC.
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Eligibility Criteria
- •Histologically confirmed NECC.
- •Aged 18 years or older.
- •English proficient.
- •Provision of signed and dated informed consent form.
- •Stated willingness to comply with all study procedures and availability for the duration of the study.
- •Access to necessary resources for participating in a technology-based intervention (i.e., computer, smartphone, internet access).
排除标准
- 未提供
研究组 & 干预措施
Focus Group
participants will take part in a focus group session to share their personal experiences
干预措施: Questionnaire (Other)
结局指标
主要结局
Demographic questionnaire
时间窗: Through study completion; an average of 1 year
This questionnaire will collect basic information including age, marital status, number of children, disease stage at diagnosis, and current disease status and treatment.
次要结局
未报告次要终点
研究者
研究点 (1)
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