National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 3,706
- 试验地点
- 7
- 主要终点
- Thoracic aortic aneurysms and dissections and their associated surgical interventions
研究概览
简要总结
The National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (GenTAC) was initiated in 2006 by the National Heart, Lung, and Blood Institute (NHLBI) and the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). GenTAC established a registry of 3706 patients with genetic conditions that may be related to thoracic aortic aneurysms and collected medical data and biologic samples. The study ended in September 2016. Data and samples are available from NHLBI and requests should be made to BioLINCC. See the NHLBI website for more information: https://www.nhlbi.nih.gov/research/resources/gentac/.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- 未提供
排除标准
- •Inability of the patient, parent or guardian to give consent.
- •Unwillingness to provide a blood or buccal specimen.
结局指标
主要结局
Thoracic aortic aneurysms and dissections and their associated surgical interventions
时间窗: bi-annual
次要结局
未报告次要终点