The Effect of Psychoeducation on Adult Siblings of People With Autism Spectrum Disorder.
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 88
- 试验地点
- 2
- 主要终点
- Psychoeducation effectiveness on the knowledge of ASD
研究概览
简要总结
The purpose of this study was to evaluate the effectiveness of a novel psychoeducational program for adult siblings of autistic individuals, aiming to improve autism-related knowledge, well-being, resilience and sibling relationship outcomes, while also highlighting the need for tailored supportive interventions for this population.
The psychoeducational program will be implemented in adult siblings of people with ASD and its effectiveness will be assessed.
We expect that after the intervention, participants in the intervention group will demonstrate improvements in the study outcomes compared with participants in the control group, and that some of these improvements will be maintained at the three-month follow-up. We further expect that the participants' level of caregiving involvement with their autistic sibling will be associated with the effectiveness of the intervention. No risk is identified.
详细描述
Autism Spectrum Disorder (ASD) is a neurodevelopmental lifelong disorder of which prevalence has been significantly increased through the decades.
As a result, the rise in autism prevalence has been accompanied by a parallel increase in the number of individuals who have autistic siblings, a group estimated to number in the millions.
Although supportive interventions have demonstrated benefits for family members, existing research has primarily focused on autistic individuals and their parents. Consequently, evidence regarding interventions specifically designed for adult siblings remains limited.
The purpose of this study was to evaluate the effectiveness of a novel psychoeducational program for adult siblings of autistic individuals, aiming to improve autism-related knowledge, well-being, resilience and sibling relationship outcomes, while also highlighting the need for tailored supportive interventions for this population. The psychoeducational program aims to enhance understanding of autism, encourage emotional expression and a sense of belonging, improve family and sibling communication, and provide practical strategies for everyday challenges.
A parallel-group randomized controlled trial with assessments at baseline, post-intervention and three-month follow-up will be conducted among adult siblings of autistic individuals across Greece (voluntary participation). Participants will be randomly allocated (1:1) to the intervention or control group. The intervention comprise six free-of-charge online psychoeducational sessions and one follow-up session and will be delivered by two social workers certified in autism psychoeducation, whereas the control group will complete questionnaires only.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Supportive Care
- 盲法
- Single (Participant)
入排标准
- 年龄范围
- 18 Years 至 70 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •were: (i) age 18 or older, (ii) having one sibling with a clinical diagnosis of ASD, (iii) no self-reported neurodevelopmental diagnosis, (iv) no prior participation in a psychoeducational program for autism and v) able to understand and communicate in Greek.
排除标准
- •were: (i) having more than one sibling diagnosed with ASD, and (ii) residing outside Greece.
- •Participants were also required to have access to the internet and a device capable of participating in the online audiovisual sessions.
研究组 & 干预措施
Psychoeducation Program Group
Participants are going to participate in the online psychoeducational program for ASD.
Number of participants: 44.
They will will be asked to complete the online questionnaires three times (pre-intervention, post-intervention and at the three-month follow-up).
干预措施: Psychoeducational program for ASD (Other)
Questionnaires Only Group
Concurrently with the intervention group, the control group will be asked to complete the online questionnaires three times (pre-intervention, post-intervention and three-month follow-up).
Number of participants: 44.
结局指标
主要结局
Psychoeducation effectiveness on the knowledge of ASD
时间窗: 6 months
The evaluation of psychoeducational program effect on knowledge of ASD is going to be evaluated throw the "Participatory Autism Knowledge Scale" questionnaire (29-item scale) will be used. The original validation studies demonstrated satisfactory psychometric properties, showing good internal consistency. The standardization and adaptation of the questionnaire into Greek has not yet been published in a peer-reviewed journal.
Psychoeducation effectiveness on siblings relationship
时间窗: 6 months
A newly developed research measure, designed specifically for this study to assess negative emotions and attitudes of adult siblings toward their autistic sibling. The questionnaire's name is "Adult Sibling Relationships and Autism Spectrum Questionnaire (ASRQ-AS) " - 31-item scale. The standardization and adaptation of the questionnaire into Greek has not yet been published in a peer-reviewed journal.
Psychoeducation effectiveness on resilience of siblings of ASD
时间窗: 6 months
The Brief Resilience Scale (BRS) was developed to assess an individual's ability to recover from stress and adversity. It can also be used to examine factors and outcomes associated with resilience in both mental and physical health, identifying individuals who may benefit from supportive or therapeutic interventions. The internal consistency (Cronbach's α) of the BRS demonstrates good reliability as well as in Greek version.
Psychoeducation effectiveness on the well-being of siblings of ASD
时间窗: 6 months
The evaluation of psychoeducational program effect on the well-being is going to be evaluated throw the questionnaire "PERMA-Profiler" (23-item scale). The scale has demonstrated adequate reliability and validity in assessing well-being - Cronbach's α values.
Psychoeducation effectiveness on the knowledge of ASD
时间窗: 6 months
The evaluation of psychoeducational program effect on knowledge of ASD is going to be evaluated throw the "Participatory Autism Knowledge Scale" questionnaire (29-item scale) will be used. The original validation studies demonstrated satisfactory psychometric properties, showing good internal consistency. The standardization and adaptation of the questionnaire into Greek has not yet been published in a peer-reviewed journal.
Psychoeducation effectiveness on siblings relationship
时间窗: 6 months
A newly developed research measure, designed specifically for this study to assess negative emotions and attitudes of adult siblings toward their autistic sibling. The questionnaire's name is "Adult Sibling Relationships and Autism Spectrum Questionnaire (ASRQ-AS) " - 31-item scale. The standardization and adaptation of the questionnaire into Greek has not yet been published in a peer-reviewed journal.
Psychoeducation effectiveness on resilience of siblings of ASD
时间窗: 6 months
The Brief Resilience Scale (BRS) was developed to assess an individual's ability to recover from stress and adversity. It can also be used to examine factors and outcomes associated with resilience in both mental and physical health, identifying individuals who may benefit from supportive or therapeutic interventions. The internal consistency (Cronbach's α) of the BRS demonstrates good reliability as well as in Greek version.
Psychoeducation effectiveness on the well-being of siblings of ASD
时间窗: 6 months
The evaluation of psychoeducational program effect on the well-being is going to be evaluated throw the questionnaire "PERMA-Profiler" (23-item scale). The scale has demonstrated adequate reliability and validity in assessing well-being - Cronbach's α values.
次要结局
未报告次要终点
研究者
Charalampos Depastas
PhD candidate in Social Work
Hellenic Mediterranean University