DRKS00021040招募中不适用
Assesment and optimising psychosocial care for persons with Li-Fraumeni syndrome and their relatives as part of the intensified screening and follow-up programme
niversitätsfrauenklinik Heidelberg0 个研究点目标入组 100 人开始时间: 2021年4月12日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 100
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 18 Years 至 120 Years（—）
- 性别
- All
入选标准
- •Diagnosis of LFS, Li-Fraumeni-Like-Syndrome, pathogenic TP53 germline variant
- •- Relatives (relative, partner, close person)
- •- From the age of 18
- •- German as mother tongue or very good knowledge of German
- •- Existence of an informed written consent to participate in the study
排除标准
- •unclassified variant in the TP 53 germline (VUS), <18 years, not able to provide written informed consent, missing buisness capability, no sufficeint german language skills, unablility to pariticpate in interviews or answer questionairs, missing informed consent
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