NCT01991925撤回不适用
Implications for Quality of Life and Quality of Care in Patients With Hereditary Haemochromatosis
适应症
试验速览
- 阶段
- 不适用
- 状态
- 撤回
- 试验地点
- 1
- 主要终点
- evaluation of quality of life
研究概览
简要总结
Patients with hereditary haemochromatosis will be interviewed/questioned about their Quality of life and the delivered quality of care in the hospital.
详细描述
Patients with hereditary haemochromatosis will be interviewed/questioned about their Quality of life and the delivered quality of care in the hospital during follow-up
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •phase 1: experts in the field of haemochromatosis (hepatologists, hematologists, endocrinologists, general practitioner, nurses, ...)
- •phase 2: patients with hereditary haemochromatosis, treatment with phlebotomy since 3 months, Dutch/English speaking
排除标准
- •patients with secondary iron overload
- •phlebotomy treatment less than 3 months
- •language: no Dutch or English
结局指标
主要结局
evaluation of quality of life
时间窗: after 3 months of treatment
quality of life
次要结局
未报告次要终点
研究者
Annick Vanclooster
Nurse
Universitaire Ziekenhuizen KU Leuven
研究点 (1)
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