Improving End of Life Care in Head and Neck Cancer
试验速览
- 阶段
- 不适用
- 状态
- 终止
- 入组人数
- 2
- 试验地点
- 1
- 主要终点
- quality of care received by patients
研究概览
简要总结
The purpose of this study is to improve the quality of care provided for head and neck cancer patients. By better understanding the end of life experiences of dying patients and their families, the investigators hope to better anticipate and improve upon the experiences of future patients and their families.
研究设计
- 研究类型
- Observational
- 观察模型
- Family Based
- 时间视角
- Retrospective
入排标准
- 年龄范围
- 21 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Head and neck cancer patients who received their treatment at MSKCC who have died of noncutaneous squamous cell carcinomas of the upper aerodigestive tract and for whom family / next of kin contact information is available.
- •Time of patient death must have been at least 6 months ago and no more than 4 years ago
- •Patient age at time of death must be over 21 years of age.
- •Those interviewed must be English-fluent.
排除标准
- •Non-English speaking interviewees
- •Next-of-kin who reported being unfamiliar with care received during the last month of life
- •Next-of-kin who did not identify themselves as one of the patient's primary social supports during the last month of life
- •Next-of-kin who were not physically present with the deceased at least once during the last week of his/her life
- •Next-of-kin under age 21
结局指标
主要结局
quality of care received by patients
时间窗: 1 year
To determine the perception of the family members of the quality of care received by patients with aerodigestive mucosal squamous cell carcinoma of the head and neck at the end of their lives. A survey will be administered to the families and next-of-kin of deceased patients. A recently validated survey instrument, the Family Assessment of Treatment at the End of life (FATE), is designed to assess treatment at the end of life based upon the responses of family members of the deceased (Finlay, Shreve et al. 2008).
次要结局
- quality of death outcomes(1 year)
- awareness among caregivers(1 year)