SIBS-ONLINE: Pilot of an online program for mental health outcomes of siblings and parents of children living with chronic illness

Behavioural Sciences Unit0 个研究点目标入组 60 人开始时间: 2021年2月19日最近更新: 2023年3月13日

适应症

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•Inclusion criteria for sibling participants
•Young people aged between 12 and 18 years old (inclusive);
•Currently living with a brother or sister who has been diagnosed with a chronic illness at least 6 months prior;
•Able to give informed consent; and
•Able to speak/read conversational English
•Must have access to a computer/smartphone/tablet and Internet connection
•We will include siblings of children with various chronic illnesses, including cancer, developmental disability, cystic fibrosis, kidney diseases, gastrointestinal disorders, and genetic neurological disorders. We aim to recruit across a wide range of chronic illnesses, to determine if SIBS-ONLINE has a broad, trans-diagnostic appeal.
•Inclusion criteria for parent participants
•One parent/guardian of each participating sibling will also participate
•Must be parent/guardian to at least one child diagnosed with a with a chronic illness at least 6 months prior, who lives at home
•Able to give informed consent
•Able to speak/read conversational English
•Must have access to a computer/smartphone/tablet and Internet connection

•Exclusion criteria for sibling and parent participants
•Parents and siblings will be not be eligible to participate if:
•They possess insufficient English language skills to complete and understand the core aims of the study, and to be able to participate in the group sessions
•They display cognitive impairment which may limit their ability to provide reliable questionnaire responses
•They have a child/sibling with a chronic illness who was diagnosed less than 6 months prior to the study
•If the child with the chronic illness is terminal and believed to be imminently dying, or has died
•They indicate serious suicidal intent and/or have a suicidal plan

发起方

Behavioural Sciences Unit