DRKS00022876已完成不适用
Health Related Quality of life in Patients with SMA - HRQoL SMA
Initiative „Forschung und Therapie für die Spinale Muskelatrophie im Förderverein für die Deutsche Gesellschaft für Muskelkranke e.V0 个研究点目标入组 113 人开始时间: 2020年10月19日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 113
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 4 Years 至 one（—）
- 性别
- All
入选标准
- •adequate understanding of German language
- •primary residence in Germany, diagnosed and genetically confirmed spinal muscular atrophy
排除标准
- •primary residence any other country than Germany, no diagnosed spinal muscular atrophy, no registration in the contacting SMA register
研究者
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