Development of the PEC-REHAB Instrument: Enhancing and Measuring Person-Centeredness in Rehabilitation Services, a Qualitative Study
试验速览
- 阶段
- 不适用
- 状态
- 进行中（未招募）
- 发起方
- 入组人数
- 120
- 试验地点
- 1
- 主要终点
- Definition of Person-centered rehabilitation.
研究概览
简要总结
This research project aims to integrate insights from marketing and rehabilitation sciences to investigate Person Centered in rehabilitation.
The research objectives are
- to better understand what Person Centered Rehabilitation means in rehabilitation,
- to understand how Person Centered Rehabilitation can be enhanced
- to develop an instrument that can be used as a quality indicator to evaluate and monitor Person Centered Rehabilitation in rehabilitation
- to understand the impact of Person Centered Rehabilitation on key outcomes in rehabilitation.
To recruit respondents, we will work together with different rehabilitation centers and hospitals with a rehabilitation department.
The interviews will be based on the Trajectory Touchpoint Technique. The interviews will be transcribed and uploaded in NVivo 14. To code the data, we will use the Gioia method which offers a systematic approach to bring qualitative rigor in qualitative research and contains of four steps.
- We will code the data based on first-order terms.
- we will systematically examine these first-order terms to organize them into second-order theory-centric themes.
- we will investigate whether it is possible to categorize the second-order themes into aggregate dimensions which serve to summarize the key components of the emerging theory
- when we have the full set of first-order terms, second-order themes and aggregate dimensions, we will have all ingredients for building a data structure. The data structure provides a graphical presentation of how we progressed from raw data to themes and dimensions.
详细描述
Person-centeredness (PEC) has emerged as a key concept in modern healthcare, marking a shift away from disease-centered models toward approaches that acknowledge and respond to the unique needs, wishes, and contexts of each individual. Within rehabilitation services, this holistic orientation is especially pertinent, given the complex interplay between physical, emotional, psychological, and social factors influencing recovery and reintegration into daily life.
Despite growing recognition of its importance, PEC remains under-defined and insufficiently operationalized in rehabilitation settings. Current efforts to assess PEC tend to focus on outcomes such as patient satisfaction or functional status, rather than directly measuring the degree to which care is aligned with individual needs and preferences. A valid and reliable measurement instrument to evaluate PEC from the patient's perspective is currently lacking.
This study addresses that gap by developing the PEC-REHAB instrument. It aims to conceptualize PEC in rehabilitation, identify its key dimensions, explore ways to enhance PEC, and ultimately validate a tool to serve as a quality indicator. This protocol describes the second step of the qualitative phase of the study, which consists of in-depth interviews with patients and their informal caregivers.
The qualitative research follows a two-step structure:
- Interviews and focus groups with rehabilitation care professionals.
- In-depth interviews with patients and their relatives.
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Other
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Patients and relatives
- •Inclusion Criteria:
- •(1) are or were admitted to a rehabilitation centre or is related/ acquainted with someone admitted to a rehabilitation centre
- •(2) are older than 18 years
- •(3) speak the Dutch language
- •(4) suffer from a non-congenital brain injury, neurological or locomotor condition can participate in this study.
排除标准
- •(1) did not sign informed consent
- •Healthcare professionals and board members, staff members and representatives
- •Inclusion Criteria:
- •are employed at a rehabilitation centre
- •are older than 18 years
- •speak the Dutch language
- •Exclusion Criteria:
- •(1) did not sign informed consent
- •Healthcare students
- •Inclusion Criteria:
- •did internships in a rehabilitation centre
- •are older than 18 years
- •speak the Dutch language
- •Exclusion Criteria:
- •(1) did not sign informed consent
研究组 & 干预措施
Healthcare professionals
This cohort includes healthcare professionals who are actively working within a rehabilitation center or rehabilitation department. Eligible participants are aged 18 years or older and have provided written informed consent. No active interventions are performed in this study. Participants are invited to take part in a focus group or an in-depth interview to share their experiences and perspectives related to person-centered care in rehabilitation.
干预措施: Conventional care with semi-structured interviews and focus groups (Other)
Patients and relatives involved in a rehabilitation process
This cohort includes individuals who are currently admitted to a rehabilitation center or rehabilitation department, as well as relatives or close contacts of such patients. Eligible participants are aged 18 years or older and have provided written informed consent. No active interventions are performed in this study. Participants are invited to take part in an in-depth interview to share their experiences and perspectives related to person-centered care in rehabilitation.
干预措施: In-depth interviews with patients and relatives (Other)
Students doing an internship in a rehabilitation department or centre
This cohort includes students linked with an education within a healthcare profession. The students did an actively internship within a rehabilitation center or rehabilitation department. Eligible participants are aged 18 years or older and have provided written informed consent. No active interventions are performed in this study. Participants are invited to take part in a focus group or an in-depth interview to share their experiences and perspectives related to person-centered care in rehabilitation.
干预措施: Conventional care with additional focusgroups (Other)
Board members, staff members and representatives
This cohort includes board members, staff members and representatives who are actively working within a rehabilitation center or rehabilitation department. Eligible participants are aged 18 years or older and have provided written informed consent. No active interventions are performed in this study. Participants are invited to take part in a focus group or an in-depth interview to share their experiences and perspectives related to person-centered care in rehabilitation.
干预措施: Semi-structured interviews and focus groups (Other)
结局指标
主要结局
Definition of Person-centered rehabilitation.
时间窗: From start study to end of study, an average of 1 year
Open-ended responses to the research questions; What is PEC in rehabilitation? No fixed measurement scale is used. Responses are analyzed using the Gioia method, resulting in a data structure based on first-order terms, second-order themes, and aggregate dimensions.
次要结局
- What are the dimensions of person-centered rehabilitation(From start study to end of study, an average of 1 year)
- How can person-centered rehabilitation be enhanced?(From start study to end of study, an average of 1 year)
研究者
Liselot Thijs
dr
Hasselt University