Latin America Network for Primary Palliative Care
试验速览
- 阶段
- 不适用
- 状态
- Enrolling By Invitation
- 入组人数
- 50
- 试验地点
- 1
- 主要终点
- To explore the facilitators and barriers to the implementation of a Latin American contextualised primary palliative care from the perspective of family medicine doctors
研究概览
简要总结
Palliative care is the holistic care provided to individuals and their families who experience health related suffering related to life-limiting conditions. Palliative care is practiced by speciality level clinicians and also non-specialists. The term Primary Palliative Care (PPC) refers to the palliative care provided in primary care by primary care staff. In Latin America (LA), palliative care services have shown strong growth over the past two decades, but remain established and integrated in only a few localised areas across the region. Building on the success of the UoE's Global Access to Palliative Care Latin America (GAP - LA) Project led by the Usher Institute and funded by the UK Medical Research Council (grant number MR/V021400/1), primary care has been identified as a natural area for capacity building and strengthening to reduce health related suffering from serious illness and improve end of life care in Latin America. The researchers will collaborate with Pallium Latin America (PLA), a LA association involved in advocacy, education and clinical care in the region.
The objectives of this study are:
- To explore the facilitators and barriers to the implementation of a Latin American contextualised primary palliative care from the perspective of family medicine doctors
- To list and describe the models in which palliative care is delivered within primary care
- To define the process and outcome measures which would be meaningful for measurement of primary palliative care
A Participatory Action Research (PAR) framework will be employed, combining both qualitative and quantitative components over 24 months. 30 to 50 primary care health professionals across LA will be recruited from the network already established by PLA to become co-researchers in line with the PAR methodology.
- Online case-based discussion meetings (around 12 every 6 to 8 weeks) and post-meeting survey
- Online individual semi-structured interviews (20-30)
- Online co-researcher focus group discussions (3-5)
- Co-researcher surveys
- Documentary analysis Online meetings, interviews and focus group discussions will be recorded, translated and transcribed. Transcripts and surveys will be the data for analysis using NVivo, RedCap and MS Excell software.
详细描述
This study's overall aim is to describe and understand how primary palliative care is defined in the setting of Latin America, what are the dominant typologies of care and meaningful outcome measures. Using case-based group discussions, this research will explore common scenarios relevant to providing palliative care in primary care settings by primary care workers in Latin America, and the knowledge that can be learnt and disseminated from these discussions.
Objectives
This study will achieve the overall aim above through the following objectives:
- To explore the facilitators and barriers to the implementation of a Latin American contextualised primary palliative care from the perspective of family medicine doctors
- To list and describe the models in which palliative care is delivered within primary care
- To define the process and outcome measures which would be meaningful for measurement of primary palliative care
3 STUDY DESIGN AND METHODS
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •- Health care co-researchers
- •Eligibility criteria of health care co-researchers:
- •Spanish or English speaking
- •Based and practicing in a Latin America country
- •Health care professional (doctor, nurse, or allied health care professional)
- •Working in primary or palliative care
- •Willing to give their written informed consent to participate in the research
- •It is expected that the majority of co-researchers will be primary care doctors. 30-50 co-researchers will be recruited.
- •Patient representative co-researchers In addition, one to three patient representatives will be recruited from the established informal network. This will be individuals who
- •Spanish or English speaking both
- •Is based in a LA country
- •Has personal experience of caring for a relative with health-related suffering from a serious condition.
- •Is willing to give their written informed consent to participate in the research.
排除标准
- •Does not speak Spanish or English
- •Is not involved in primary care or palliative care
- •Is not based in a LA country
- •Is unwilling to give their written informed consent to participate in the research.
研究组 & 干预措施
Family Doctors
Latin American primary care doctors interested in palliative care
结局指标
主要结局
To explore the facilitators and barriers to the implementation of a Latin American contextualised primary palliative care from the perspective of family medicine doctors
时间窗: 24 months
The qualitative research will seek to understand how family medicine doctors in Latin America understand and practice primary palliative care, and what helps and hinders this.
To list and describe the models in which palliative care is delivered within primary care
时间窗: 24 months
The survey will ask Latin American family doctors how they deliver primary palliative care. These data will help the research team to understand the characteristics of these different approaches.
To define the process and outcome measures which would be meaningful for measurement of primary palliative care
时间窗: 24 months
By consensus through focus groups, the research will seek to understand what measures would be valuable in understanding the effectiveness of any primary palliative care models of service provision
次要结局
未报告次要终点