EULAR Impact of Rheumatic and Musculoskeletal Diseases Survey
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 1,000
- 试验地点
- 1
- 主要终点
- General population description - diagnosis
研究概览
简要总结
The EULAR Impact of RMDs Survey collects first-hand information about the impact of rheumatic and musculoskeletal diseases (RMDs) among patients across and beyond Europe. Through periodic questionnaires, patients will provide information about their healthcare situation, and how the disease affects their social and occupational lives. This data will be an important resource for researchers, healthcare professionals, and patients alike, providing valuable insights into the burden of disease and helping improve the overall care for people living with these conditions.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •18-year-old at time of baseline survey
- •Living in a EULAR country at time of baseline survey
- •Diagnosed with at least one RMD
- •Valid personal e-mail address
- •Being able to use an internet website
排除标准
- 未提供
结局指标
主要结局
General population description - diagnosis
时间窗: every 6 months for up to 5 years
diagnosis (name of the disease)
General population description
时间窗: every 6 months for up to 5 years
year of birth
General population description - country
时间窗: every 6 months for up to 5 years
country of residence
次要结局
- Diagnosis history - Inpatient care(every 6 months for up to 5 years)
- Diagnosis history - outpatient care history(every 6 months for up to 5 years)
- Disease burden - impact of disease(every 6 months for up to 5 years)
- Diagnosis history - timeline(every 6 months for up to 5 years)
- Diagnosis history - physician treating the RMD(every 6 months for up to 5 years)
- Non-pharmacological and pharmacological treatments.(every 6 months for up to 5 years)
- Consequences on work and life (WPAI questionnaire)(every 6 months for up to 5 years)
- Other barriers due to RMD(every 6 months for up to 5 years)
- Demographics - persons living with patient(every 6 months for up to 5 years)
- Demographics - professional status(every 6 months for up to 5 years)
- Other chronic diseases(every 6 months for up to 5 years)
- Disease burden - health assessment(every 6 months for up to 5 years)
- Disease burden - quality of life(every 6 months for up to 5 years)
- Health care(every 6 months for up to 5 years)