NCT00966927进行中（未招募）不适用
Assessment of Functional Independence and Quality of Life in Italian Population of Adolescents With Spina Bifid
Azienda USL Reggio Emilia - IRCCS1 个研究点 分布在 1 个国家目标入组 41 人开始时间: 2021年7月1日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 进行中（未招募）
- 发起方
- 入组人数
- 41
- 试验地点
- 1
- 主要终点
- correlation between the quality of life in adolescents and young adults with Spina Bifid and their level of functional independence
研究概览
简要总结
The purpose of this study is to investigate the level of functional independence and the quality of life of adolescents and young adults with spina bifid in an Italian population.
详细描述
We submitted the Quality of Life in spina bifid Questionnaire to subjects who participated in the study and the Spinal Cord Independence Measure to the parents of subjects.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 14 Years 至 21 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •recurrence of clinic control in Unit for Spina Bifid in Parma
- •14-21 years old
排除标准
- •subjects unable to understand the items of the questionnaire (mental retardation and need for help at school )
- •subjects without any caregiver
结局指标
主要结局
correlation between the quality of life in adolescents and young adults with Spina Bifid and their level of functional independence
时间窗: 5 months
次要结局
- correlation between functional level of independence and motor level of neurological lesion(5 months)
研究者
研究点 (1)
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