NCT07663539招募中不适用
Foundations of Communication in Uncertainty Study (FOCUS): Insights From Bereaved Parents and Oncologists
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 50
- 试验地点
- 1
研究概览
简要总结
Investigators want to find better ways for doctors and families to talk about cancer and how uncertainty may affect a child's life.
详细描述
Primary Objective
- To characterize how bereaved parents of children with cancer and their child's oncologist perceive their experience with communication about prognostic uncertainty during the child's cancer journey and during bereavement.
Secondary Objective
- To elicit parents' and oncologists' preferences and recommendations for how clinicians should talk with children and families about prognosis in the setting of uncertainty.
This study aims to explore bereaved parents' and oncologists' reflections on communication about prognostic uncertainty during the child's cancer treatment. Parents who have lost a child to cancer and the doctors who treated them will be invited to join this study.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •All participants must be ≥ 18 years of age or legally emancipated
- •Parent Participants must have a child who:
- •Received cancer care from a clinician at St. Jude, as documented in the electronic medical record, AND
- •Died at least 6 months prior to enrollment, but no more than 24 months prior to enrollment.
- •Oncologist participants at St. Jude must:
- •Be listed as the primary oncologist as documented in the electronic medical record, AND
- •Have the respective patient's parent agreement to participate in the study.
排除标准
- •Declining, refusal, or unwillingness to participate
- •Inability or unwillingness of research participant to give informed consent.
研究组 & 干预措施
Oncologist Participants
St. Jude doctors who treated the child
Parent Participants
Parents who have lost a child to cancer
研究者
研究点 (1)
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