DRKS00033193招募中不适用
MySyndrome - Rare Disease Patient Registry for Treatability, Natural History, Phenotype and Psychosozial Aspects of Rare Genetic Developmental Diseases - MySyndrome
kbo-Kinderzentrum / TUM Lehrstuhl Sozialpädaitrie0 个研究点目标入组 1,000 人开始时间: 2023年12月5日最近更新:
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 1,000
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- one 至 20 Years（—）
- 性别
- All
入选标准
- •rare genetic developmental disease
排除标准
- 未提供
研究者
相似试验
已完成
不适用
Central Information Portal for rare diseases - Sub-project 2: Information Request from patients and their families.Rare diseases.DRKS00006011niversität Hannover - Center for Health Economics Research92
招募中
不适用
Disease Registry for patients with MPS I disease.observational program for patients with MPS I disease that was designed to track the natural history and outcomes of patientsCTRI/2018/03/012266Sanofi Synthelabo India Private Limited
尚未招募
不适用
Pompe Disease Registry.An observational program for patients with Pompe disease that was designed to track the natural history and outcomes of patients.CTRI/2018/03/012267Sanofi Synthelabo India Private Limited
招募中
不适用
Disease Registry for patients with Fabry disease.An observational program for patients with Fabry disease that was designed to track the natural history and outcomes of patients.CTRI/2018/03/012268Sanofi Synthelabo India Private Limited
尚未招募
不适用
development patient data set by recording and maintenance a registry at the national levelCTRI/2019/06/019661Indian Council of Medical Research