Feasibility and Effectiveness of a Wellness Program in Individuals Living With Atypical Parkinsonism
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 30
- 试验地点
- 1
- 主要终点
- Attendance and retention rates
研究概览
简要总结
The goal of this interventional study is to evaluate the feasiblity and effectiveness of a multimodal lifestyle program for individuals living with Progressive Supranuclear Palsy or Corticobasal Deneration. The main objectivess of the study are to:
- Assess the feasibility of the program
- Assess the effects of the program on emotional wellbeing and quality of life
- Assess the effects of the program on caregiver burden
Participants will join an 8-week program combining chair yoga, vocal strengthening, and peer support groups, conducted virtually. Participants will complete pre- and post- intervention questionnaires related to emotional wellbeing and quality of life. When applicable, care partners will be asked to complete a caregiver burden questionnaire.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Basic Science
- 盲法
- None
入排标准
- 年龄范围
- 19 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Age over 18 years.
- •PSP or CBD diagnosis based on Movement Disorder Society criteria.
排除标准
- •Significant cognitive impairment.
- •Inability to fill in electronic questionnaires or understand study instructions.
- •Any contraindication for exercise based on the Physical Activity Readiness for Everyone Questionnaire (PAR-Q+).
研究组 & 干预措施
Intervention
干预措施: Exercise and Peer Support (Behavioral)
结局指标
主要结局
Attendance and retention rates
时间窗: From enrollment to completion of post- intervention questionnaires
次要结局
未报告次要终点
研究者
Silke Cresswell
Principal Investigator
University of British Columbia