A Randomized Intervention Study of Family-integrated Care for Reducing Uncertainty About Illness in Parents of Preterm Infants
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 70
- 试验地点
- 1
- 主要终点
- The total Scores of PPUS(Parents' Perception of Uncertainty Scale )
研究概览
简要总结
To explore the intervention effect of family participatory nursing on the uncertainty of illness of parents of hospitalized premature infants, and to evaluate the uncertainty level of parents of premature infants in different stages. The study will be described the feeling of parents of premature infants after family participation nursing through interview. We will provide support for families of premature infants, and then to provide support for growth and development of premature infants.
详细描述
Most of the current management mode of restricting or forbidding visiting in neonatology, parents can not establish the perception of premature infants and lack of communication with medical staff, which will lead to negative emotions represented by uncertainty of disease.The research on uncertainty of disease started late in China, mostly used in tumor, epilepsy and congenital heart disease. The research on parents of NICU children mostly focused on the analysis of influencing factors of uncertainty of disease, lacking intervention research, and the measures were only the information support mode based on health education. We want to explore the intervention effect of family participatory nursing on the uncertainty of illness of parents of hospitalized premature infants, and to evaluate the uncertainty level of parents of premature infants in different stages. Describe the feeling of parents of premature infants after family participation nursing through interview. We will provide support for families of premature infants, and then to provide support for growth and development of premature infants.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Supportive Care
- 盲法
- Single (Investigator)
入排标准
- 年龄范围
- 1 Hour 至 2 Months（Child）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •32 weeks < gestational age < 37 weeks
- •Birth weight ≤ 2500g
- •Apgar score > 7
- •Transferred to our hospital within 8 hours after birth
- •Have normal communication ability and understanding ability
- •Agreed to participate in this study
排除标准
- •With serious life-threatening diseases, the neonatal critical cases score (discussion draft) was rated as "extremely critical"
- •There are serious diseases or major negative events in the family (such as traffic accidents, natural disasters, etc.)
结局指标
主要结局
The total Scores of PPUS(Parents' Perception of Uncertainty Scale )
时间窗: from adminssion to discharge (almostly 14 hospitalization days )
The scale is one of a series of uncertainty scales developed by Mishel in 1998 under the guidance of uncertainty theory of disease, which is one of the series of uncertainty scales for different groups of people. Its content includes 4 dimensions, 31 items, unclear (13 items), complexity (9 items), lack of information (5 items), and unpredictable (4 items). It includes one score from 4 dimensions adding. The score is much higher, the parents maybe feel more uncertainty.According to the response of the responders, from "completely disagree" to "completely agree", the total score is "31-155". The higher the score is, the stronger the uncertainty of the disease is. When the total score is more than 50% of the highest score, the responders are considered to have higher uncertainty of the disease.
次要结局
- The Scores of Family satisfaction(The 30th day after discharge.)