Adolescents and Young Adults With Cancer: Their Preferred Involvement in Decision Making
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 100
- 试验地点
- 1
- 主要终点
- Distribution of Decision-Making Roles in Clinical Scenarios
研究概览
简要总结
The purpose of this mixed-methods study is to determine Adolescent and Young Adult (AYAs) decision making preferences post cancer diagnosis using vignettes designed to assess their preferred involvement in decisions about their cancer treatment and variables associated with these treatment decision-making (TDM) preferences.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 15 Years 至 29 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Age (15-29 years)
- •Cancer diagnosis and on therapy, end-of-life or survivors (within 1 year)
- •Speaks English
- •Reads English
- •Cognitively and physically able to participate
排除标准
- •Unable to participate in study due to developmental delay or developmental disorder
研究组 & 干预措施
AYA Decision-Making Role Assessment
Participants will complete an electronic socio-demographic questionnaire followed by a set of hypothetical clinical decision-making scenarios to assess preferred decision-making roles and involvement of healthcare providers and family/friends. Responses will inform understanding of facilitators and barriers to shared decision-making.
干预措施: Clinical Decision-Making Scenarios and Preferences Assessment (Behavioral)
结局指标
主要结局
Distribution of Decision-Making Roles in Clinical Scenarios
时间窗: Within 2 weeks of survey link delivery
Proportion of participants who select an active, collaborative, or passive role in hypothetical clinical decision-making scenarios. Each role will be counted and compared across participant subgroups.
次要结局
- Association Between Sociodemographic Characteristics and Decision-Making Role(At time of electronic survey completion)
- Concordance Between Interview Responses and Scenario-Based Decision-Making Roles(At time of interview, within 4 weeks of survey completion)
- Correlation Between Healthcare Encounters and Decision-Making Role Preference(At time of interview, within 4 weeks of survey completion)