Use of Online Communications to Support Patients and Their Families in the Hospice Unit
试验速览
- 阶段
- 不适用
- 发起方
- 入组人数
- 20
- 主要终点
- SWAT - The social work assessment tool
研究概览
简要总结
The increasing awareness of the importance of palliative care has led, in Israel, to the 2005 Law for the Rights of Persons with Terminal Illness. Still, problems of accessibility to palliative care remain unresolved. The use of e-health services is likely to expand the ability of the medical, psychosocial and nursing staff to reach patients who are either living in the periphery, are unable to make clinic visits or whose family members are housebound in order to be caregivers. This exploratory research is designed to explore the issues, barriers and advantages of e-health care through the perspective of the palliative care staff members, the patients themselves and their caregiving family members.
详细描述
This study is designed to test the applicability and suitability of e-health services (e.g. by use of SKYPE) to the psychosocial needs of patients and their families who are getting services through home hospice care. In addition, the attitudes of the hospice staff will be investigated to the use of e-health methods. The study will clarify selection criteria, referral pathways and barriers and/or supporting elements that will allow e-health services to be provided in a highly professional fashion. Up to 20 dyads of a patient and their primary caregiver will be recruited from those who are receiving services from the home hospice unit of the Kupat Holim Clalit (General Sick Fund) in the South of Israel.
研究设计
- 研究类型
- Interventional
- 分配方式
- Non Randomized
- 干预模型
- Single Group
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Patient currently receiving care from the home hospice unit,
- •over the age of 18,
- •able to give informed consent,
- •with a computer that can use SKYPE or a smartphone,
- •speaking a language of the psychosocial staff person (Hebrew, English, Russian, Arabic).
排除标准
- •Brain tumors,
- •dementia,
- •speech disturbance,
- •refusal to participate,
- •language other than the four spoken by psychosocial staff members,
- •inability to use technology or lack of computer in the home.
结局指标
主要结局
SWAT - The social work assessment tool
时间窗: One year
Tool to assess the quality of social work psychosocial services
次要结局
- EIS (Emotional Intimacy Scale)(6 month)
- SLDS (Satisfaction with cancer scale)(6 month)
- the will to live question(6 month)
- ZBI (Zarit burden scale),(6 month)
- attitudes toward use of e-therapy questionnaire.(6 month)
研究者
Pesach Shvartzman
Prof.
Meir Medical Center