NL-OMON48308已完成不适用
FSHD-FOCUS 2: Five years follow up in FSHD - FSHD-FOCUS 2
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 200
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 18 至 99（—）
入选标准
- •All 203 genetically confirmed FSHD patients that participated in the FSHD-FOCUS
- •study (CMO 2014-121) and were (at the time of the study or before) informed
- •about the genetic confirmation of FSHD.
排除标准
- •Incapacitated persons will not be included in this study. FSHD patients that
- •participated in the FSHD-FOCUS study but were not informed about the genetic
- •testing results for FSHD will not be included in this study.
- •Persons with contra-indications for MRI-scan are excluded for that one
- •procedure, but can still be included in the study. Contra-indications for
- •MRI-scan include metallic implants (vascular clips, foreign bodies like
- •metallic splinters in the eye, coronary and peripheral artery stents,
- •prosthetic heart valves, pacemakers and ICD*s, cochlear implants, breast tissue
- •expanders and some other electronic implants or devices), renal insufficiency,
- •previous allergic reaction to contrast fluids and known claustrophobia.
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