Test of an Innovative, Scalable Support Program for Parents With a Young Child Recently Diagnosed With Autism Spectrum Disorder
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 388
- 试验地点
- 1
- 主要终点
- CES-Depression
研究概览
简要总结
To address the dual needs of parents for support in navigating Autistic Spectrum Disorder (ASD) services and maintaining positive family functioning, the investigators propose to test Autism Parent Navigators (APN), an innovative in-home, peer support model for parents with a young child recently diagnosed with ASD.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Supportive Care
- 盲法
- Double (Participant, Outcomes Assessor)
入排标准
- 年龄范围
- 2 Years 至 —（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Parents of children who have been newly diagnosed with Autism Spectrum Disorder (ASD).
- •The child will be age 2-6 years and been diagnosed with ASD in the past four months.
- •The child is the first child in the family to be diagnosed with ASD.
- •Parents are not already involved in a parent mentoring relationship.
- •Parents are currently involved in a couple relationship, including same-sex partners, dating couples, adoptive parents and step-parent families.
排除标准
- 未提供
研究组 & 干预措施
Peer mentoring
Peer mentors will offer an equivalent number of in-home or telephone visits for families, providing non-manualized peer support.
干预措施: Peer mentoring (Behavioral)
Autism Parent Navigators Intervention
Autism Parent Navigators Intervention is a manualized, in-home, peer support model for parents with a young child recently diagnosed with ASD.
干预措施: Autism Parent Navigators (Behavioral)
结局指标
主要结局
CES-Depression
时间窗: 12 month
Parent depression
Weekly Count of Service Navigation Behaviors
时间窗: 12 month
Engagement with ASD-related Services
Parenting Scale (Arnold)
时间窗: 12 month
Parenting consistency, warmth
次要结局
- PDD-BI(12 month)
- Coparenting Relationship Scale (Feinberg, Brown, & Kan, 2012)(12 month)
- Family Empowerment Scale - FES(12 month)
研究者
Mark Feinberg
Research Professor
Feinberg, Mark, Ph.D.