Bereaved Parent Conversations on Hope (BeHope)
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 75
- 试验地点
- 1
- 主要终点
- Feasibility of Intervention and Acceptability of Intervention Measures
研究概览
简要总结
This study looks at whether it is possible and helpful to have video call conversations about how hopes can change through the cancer journey between bereaved parents and learners at a children's cancer center.
详细描述
Primary Objectives
Aim 1: To assess feasibility and acceptability of virtual conversations about hope between bereaved parent advisors and learners at St. Jude Children's Research Hospital.
Aim 2: To evaluate impact of discussions about hope on both bereaved parent advisors and learners.
Secondary Objectives
Aim 1: To explore impact of discussion with bereaved parent advisors and subsequent reflection on participant professional identity formation.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Other
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Intervention Participants must be:
- •Students, observers, trainees, and newly hired clinicians,
- •≥18 years old,
- •participating in or observing clinical care at St. Jude Children's Research Hospital, and
- •willing to participate in the virtual intervention and associated study activities as learners
- •Intervention Facilitators must be:
- •Bereaved parents,
- •≥ 18 years old,
- •screened and cleared to volunteer as advisers with St. Jude Children's Research Hospital through Family, Guest and Volunteer Services, and
- •willing to participate in the virtual intervention and associated study activities as a facilitator
排除标准
- •Intervention Participants:
- •Age < 18 years, decline participation, or unable to speak/write in conversational English.
- •Intervention Facilitators:
- •Age < 18 years, decline participation, or unable to speak/write in conversational English.
研究组 & 干预措施
Educational Intervention
Intervention Participants: Students, observers, trainees, and newly hired clinicians ≥18 years old participating in or observing clinical care at St. Jude Children's Research Hospital, and willing to participate in the virtual intervention and associated study activities as learners.
Intervention Facilitators: Bereaved parents ≥ 18 years old screened and cleared to volunteer as advisers with St. Jude Children's Research Hospital and willing to participate in the virtual intervention and associated study activities as a facilitator.
干预措施: Discussion Guide (Other)
Educational Intervention
Intervention Participants: Students, observers, trainees, and newly hired clinicians ≥18 years old participating in or observing clinical care at St. Jude Children's Research Hospital, and willing to participate in the virtual intervention and associated study activities as learners.
Intervention Facilitators: Bereaved parents ≥ 18 years old screened and cleared to volunteer as advisers with St. Jude Children's Research Hospital and willing to participate in the virtual intervention and associated study activities as a facilitator.
干预措施: Post-session Reflection Exercise (Other)
结局指标
主要结局
Feasibility of Intervention and Acceptability of Intervention Measures
时间窗: Day 1 after virtual meeting
Feasibility will be evaluated using the Feasibility of Intervention Measure (FIM), which includes four itemized responses that are scored from one to five, such that one represents the lowest possible mean score and five the highest possible mean score. Acceptability will be evaluated using the Acceptability of Intervention Measure (AIM), which includes four itemized responses that are scored from one to five, such that one represents the lowest possible mean score and five the highest possible mean score. Feasibility and acceptability will be evaluated for the overall study cohort, including both learners and bereaved parent advisors, and by subgroup. Feasibility and Acceptability are standardly considered to be achieved with a mean score ≥3 for each. Higher scores indicate greater perceived feasibility and acceptability.
Survey
时间窗: At enrollment and day 1 after virtual meeting
To evaluate the impact of discussions about hope on both bereaved parent advisors and learners, investigators will summarize the distribution of responses to the pre and post intervention survey items by reporting frequencies and percentages for each response category. Pre-intervention surveys will also contain demographic information.
Written Reflections
时间窗: Day 1 after virtual meeting
Written reflections, captured after each virtual session, will be de-identified and analyzed using content analysis, an inductive approach which may include memo-writing, codebook development, coding, reconciliation, and synthesis to identify patterns and themes that emerge from the reflections. These will be used to assess impact of the session on both learners and parent advisors.
次要结局
- Debrief Sessions(Quarterly over 2 years)