NL-OMON53703招募中不适用
Cognitive Functioning And Health Related Quality Of Life In Retinoblastoma Survivors: The Role Of Cancer Treatment And Repeated Anesthesia - RbNeuroQoL study
Amsterdam UMC0 个研究点目标入组 660 人开始时间: 待定最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 660
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 2 至 64（—）
入选标准
- •Cognitive functioning, psychosocial functioning and HRQoL in Rb survivors and
- •former Rb risk carriers (neuropsychological assessment and questionnaires):
- •In order to be eligible for inclusion the potential participant must meet all
- •inclusion criteria:
- •1. Rb diagnosis, (main)treatment and follow-up of Rb patients and -survivors,
- •or Rb screening took place at the Dutch Retinoblastoma Expertise Center of the
- •Amsterdam University Medical Centers,
- •2. Rb survivor or former Rb risk carriers is between 8 and 35 years old,
- •3. Average understanding of the Dutch language.
- •Psychosocial wellbeing of the caregiver and pediatric trauma (only
- •questionnaires):
- •In order to be eligible for inclusion the potential participant must meet all
- •inclusion criteria:
- •1. Being a caregiver of a Rb survivor or Rb risk carrier that have been
- •diagnosed and receive(d) (main) treatment and follow-up or screening at the
- •Dutch Retinoblastoma Expertise Center of the Amsterdam University Medical
- •2. The related Rb survivor or Rb risk carrier is < 12 years old,
- •3. Average understanding of the Dutch language.
排除标准
- •A potential participant who meets any of the following criteria will be
- •excluded from participation in this study:
- •1. Pre-existing documented developmental delay and/or severe cognitive
- •impairments (IQ <70),
- •2. Having an active, uncontrolled psychiatric illness,
- •3. Rb diagnostic trajectory, treatment and follow-up at another hospital or
- •before the founding of the Dutch Retinoblastoom Expertise Center in 1991. With
- •exception of Rb survivors (diagnosed >1991) who apart from treatment at the
- •Dutch Retinoblastoma Center also required specialized treatment (such as
- •radiation) at another center: they are illegible for inclusion.
研究者
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