Integrated Parkinson Care Networks: Addressing Complex Care in Parkinson Disease in Contemporary Society
试验速览
- 阶段
- 不适用
- 入组人数
- 50
- 试验地点
- 2
- 主要终点
- Narrative interviews
研究概览
简要总结
The researchers wish to determine what are patients/care partners priorities in terms of care delivery based at home/community and define the envisioning care delivery model that support both social care and medical care from the perspective of people living with Parkinson.
详细描述
The researchers wish to determine what are patients/care partners priorities in terms of care delivery based at home/community and define the envisioning care delivery model that support both social care and medical care from the perspective of people living with Parkinson.
Narrative interviews and workshops are conducted to obtain information on:
- Everyday life, living with PD (perception and consequences of PD in everyday life)
- Care delivery priorities from the perspective of PwPs & Care Partners
- Factors influencing care delivery (facilitators & barriers)
- Needs and expectations about social care and medical care
- Role playing by eHealth technologies in a care delivery model based at home/community
Narratives are stories that are based on the unfolding of events or actions from the perspective of a patient's life experience. Patients and care partners tell their stories of illness and how they live with illness over time. They are encouraged to share their personal stories of living with PD, using health services, community resources.
The researcher could focus on the care priorities, the support needed, the information needed and the challenges faced. The narrative interview will be used to get an overview of the patient's trajectory.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 65 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Major patients, over 18 and under 65 years of age, Diagnosed at different stages of Parkinson's disease (recent, intermediate, advanced) Understands and speaks French to be able to answer questionnaires and interviews Affiliated to a social security scheme Patient who did not oppose participation in the study. Where possible, we will vary the profiles of people: socio-demography, gender, age, etc.
排除标准
- •Patient and/or participant objecting to the research Pregnant and/or nursing women Persons under justice, guardianship or curatorship In-patient or intensive care patients
结局指标
主要结局
Narrative interviews
时间窗: 1 day
Identify the expectations and priorities of people living with Parkinson's disease for medical-social benefits.
次要结局
未报告次要终点