Study of the Role of Socio-psychological Factors in the Hematopoietic Stem Cell Transplantation Process in People With Hemopathies

complementary informations: size

时间窗: 15 days before hospitalization

they indicate it in meter and centimeters

Life Orientation Test-Revised (LOT-R)

时间窗: 15 days before hospitalization

Assessment of dispositional Optimism level Scheier, Carver \& Bridge,1994 10-items scale: 6 items assessing optimism component and 4 fillers. The total score is the sum of the 6 items. Range for the total scale: \[6-42\]. More the score is high, more the optimism level is high. No pathological score.

Acceptance and Action Questionnaire-version 2 (AAQ-II)

时间窗: 15 days before hospitalization

Assessement of two dimensions of psychological flexibility (involved in a good mental health) Bond et al., 2011 ; Monestès et al., 2009 10-items scale. Range for the full scale \[10-70\]. The total score is the sum of the 10 items. More the the score is high, more the psychological flexibility is high. No pathological score

General Self Efficacy Scale (GSES)

时间窗: 15 days before hospitalization

Assessment of Perceived Self Efficacy level (e.g. Am I think myself able to do something ?) Schwarzer \& Jerusalem, 1995 10-items scale. The total score is the sum of all items. Range for full scale : \[10-40\] More the score is high more the general self efficacy level is high. No pathological score

Toronto Alexithymia Scale-20 (TAS-20)

时间窗: 15 days before hospitalization

Assessment of alexithymia level (i.e. difficulties in experiencing and expressing feelings) Bagby, Parker \& Taylor, 2003 ; Loas et al., 1997 20-items scale. Range for the full scale: \[20-100\]. 3 subscales: "difficulty identifying feelings" (7 items, \[7-35\]), "difficulty describing feelings to others" (5 items, \[5-25\]), "externally oriented thinking" (8 items, \[8-40\]). A score beyond 61 is considered as pathological.

Five Facets Mindfulness Questionnaire (FFMQ)

时间窗: 15 days before hospitalization

Assessement of Mindfulness level as a dispositional dimension. Baert et al., 2006 ; Heeren et al., 2011 39-items scale 5 underscores for each facets of mindful trait: to observe (8 items, max=40), to describe (8 items, max= 40), to act with awareness (8 items, max= 40), to non judge (8 items, max= 40, to non react (7 items, max= 35) Range for full scale: \[39-195\] More the score is high more the mindfulness level is high. No pathological score

Authentic sustainable happiness scale (ASHS)

时间窗: 6 months after hospitalization

Dambrun et al. (2012) Assessment of a happiness component through 13 items (e.g.: satisfaction, general well-being, serenity, etc.). 2 happiness subscales to sum for obtain the total score of hapiness: "contentment" (8 items) and "inner peace" (5 items). Range for full scale: \[13-91\]. Range for "contentment subscale": \[8-56\]. range for "inner peace" subscale: \[5-35\]. More the score is high, more the level of authentic and sustainable happiness is high. No pathological score. Dambrun et al., 2012 16-items scale

Adult Dispositional Hope Scale (ADHS)

时间窗: 15 days before hospitalization

Assessement of Dispositional Hope level of people. Snyder et al., 1991 ; Gana et al., 2012 12-items scale. range for the full scale: \[8-64\]. 2 subscales: "agency" (4 items, \[4-32\]), "pathways" (4 items, \[4-32\]) and 4 fillers. The total score is the sum of the 8 items. More the score is high, more the dispositional hope level is high. No pathological score.

Socio-demographic informations: marital status

时间窗: 15 days before hospitalization

5 propositions; single, couple, married, widowed, other

Socio-demographic informations: country

时间窗: 15 days before hospitalization

people note the country where they were born

Socio-demographic informations: religion

时间窗: 15 days before hospitalization

2 propositions: YES or NO

complementary informations: weight

时间窗: 15 days before hospitalization

they indicate it in kilograms

complementary informations: artistic activity

时间窗: 15 days before hospitalization

2 propositions: YES or NO

Single Item Self Esteem (SISE)

时间窗: 15 days before hospitalization

Assessment of self-esteem dimension Robins et al., 2001 1-item scale. Range of the item \[1-7\]. More the score is high, more the self-esteem level is high. No pathological score.

General Questionnaire SF-12: mental and social quality of life

时间窗: 6 months after hospitalization

Mental and social quality of life assessment 12-items scale. For each item one standardized score of mental and social quality of life is computed ( \[5,89058 ; 71,96825\])and one standardized score is computed for the physical quality of life (\[9,94738 ; 70,02246\]). the mean among the general population is 50. More the score is high, more the level of quality of life is high

Perceived Stress Scale (PSS)

时间窗: At the 7th day of hospitalization

Assessement of perceived stress level (i.e. How much life situations are threatening, unpredictable and uncontrollable). Cohen, Karmack, Mermelstein, 1983 10-items scale. range for the full scale: \[0-40\]. The total score is the sum of all the 10 items. Between 0 and 13: low level of perceived stress. Between 14 and 26: middle level of perceived stress. Between 27and 40: high level of perceived stress.

Levenson scale - Internality- Power of others and Hasard scale (IPAH scale )

时间窗: At the 7th day of hospitalization

Assessment of 3 locus of control facets : Internality; externality (power of others); externality (chance). This scale aims to determine to whom or what do individuals attribute the reasons for the occurrence of an event. Jutras, 1987 24-items scale. 3 underscores are computed: internality score (8 items, \[6-48\]), externality/ power of others (8 items, \[6-48\]) and externality/ hasard (8 items, \[6-48\]). More the score for each subscale is high more the internality / externality level is high. No pathological score.

Personal Growth scale

时间窗: 6 months after hospitalization

Assessment of one dimension of psychological well-being. Ryff \& Essex, 1992 14-items scale. range for the full scale: \[14-84\]. Total score is the sum of the 14 items. More the score is high, more the level of personal growth is high. No pathological score.

Hospital Anxiety and Depression Scale

时间窗: 6 months after hospitalization

Assessement of anxiety and depression symptoms for hospitalized people Zigmond \& Snaith, 1983 14-items scale 2 underscores: "depression" score (7 items) and "anxiety" score (7 items). One score for depression is computed (sum of 7 items, \[0-21\] and one for "anxiety" is computed too (sum of 7 items, \[0-21\]). For each subscales: a score under 7 is not pathological; between 8 and 10 there is a suspicion of symptomatology; and beyond 11 means an established symptomatology.

Positive Affect and Negative Affect Schedule (PANAS)

时间窗: 15 days before hospitalization

Assessment of positive affectivity (curious, motivated, enthusiastic, proud, etc.) and negative affectivity (guilty, nervous, anguished,etc.) levels Watson, Clark \& Tellegen, 1988 ; Caci \& Baylé, 2007 20-items scale. 2 underscores: positive affectivity score (10 items, \[10-50\]) and negative affectivity score (10 items, \[10-50\]). More the score is high for each subscale, more the experience of positive/ negative affectivity is high. No pathological score.

Body boundaries scale (BBS)

时间窗: 15 days before hospitalization

Assessment of perceived boundaries of body: prominent boundaries or not prominent boundaries are the two extremes of the continuum Dambrun \& Ricard, 2012 Analogic scale. range for the full scale \[0-15\]. More the score is high more the body boundaries are prominent. No pathological score.

Brief Strengths Test

时间窗: 6 months after hospitalization

Assessement of personal strengths involved in resiliency, good mental health, happiness. Clustered in 6 different virtues : wisdom and knowledge, courage, humanity, justice, temperance, transcendence. Park, Peterson \& Seligman, 2004 24-items scale. range for the full scale: \[24-120\]. 6 underscores are computed for each virtue: wisdom and knowledge (5 items, \[5-25\]), courage (4 items, \[4-20\]), humanity (3 items, \[3-15\]), justice (3 items, \[3-15\]), temperance (4 items, \[4-20\]), transcendence (5 items, \[5-25\]). More the score is high, more the level of wisdom and knowledge/ courage/ humanity/ justice/ temperance/ transcendence is high. No pathological score.

Socio-demographic informations: educational level

时间窗: 15 days before hospitalization

What level of education (i.e. degree)

Ego Resiliency Scale-revised (EGO-R-r)

时间窗: 15 days before hospitalization

Assessment of Resiliency as a dispositional dimension. 2 subscales: "optimal regulation" (6 items, \[6-42\] and "openness to life experience" (4 items, \[4-28\]). Range for the full scale: \[10-70\]. The total score is the sum of the 2 subscales scores (10 items). More the score is high, more the resiliency level is high. No pathological score. Alessandri, Vecchione, Caprara, \& Letzring, 2011 10-items scale

Avoidance and Fusion Questionnaire for Adults (AFQ)

时间窗: 15 days before hospitalization

Assessement of experiential avoidance and fusion, 2 dimensions of psychological inflexibility (involved in the maintenance of emotional disorders as depression or anxiety) Fergus et al., 2012 17-items scale. Range for the full scale: \[0-68\]. The total score is the sum of the 17 items. More the score is high, more the psychological inflexibility is high. No pathological score

Big Five Inventory (BFI)

时间窗: 15 days before hospitalization

Assessment of 5 personality dimensions: extraversion (8 items, \[8-40\], openness (10 items, \[10-50\]), consciousness (9 items, \[9-45\]), agreeableness (8 items, \[8-40\]) and neuroticism (8 items, \[8-40\]). John \& Srivastava, 1999 ; Plaisant et al., 2010 45-items scale 5 underscores for each personality facet. More the score is high for each personality facet, more the level of extraversion/ openness/ consciousness/ agreeableness/neuroticism is high. No pathological score.

Mental Adjustment to Cancer Scale (MACs)

时间窗: 6 months after hospitalization

Coping strategies assessment (i.e. What kind of behavioral or emotional strategies are put in place to cope with stressful events). 5 strategies assessed: fighting spirit, avoidance, helplessness-hopelessness, anxious preoccupations, denial. Watson et al., 1998 ; Cayrou et al., 2003 45-items scale. For each strategy a score is computed: fighting spirit (\[13;52\], 14 items), avoidance (\[5; 20\], 5 items), helplessness-hopelessness (\[11;44\] ,11 items), anxious preoccupations (\[12; 48\],12 items), denial (\[3; 12\], 3 items). More the score is high for each subscale, more the fighting spirit / avoidance/ helplessness-hopelessness/ anxious preoccupations/ denial strategy is used. No pathological score

Post Traumatic Growth Inventory

时间窗: 6 months after hospitalization

Assessment of post traumatic growth level which encountered with traumatized people. 5 different dimensions of PTG: changes in relationships , spirituality , personal growth , personal strength, new possibilities, life satisfaction. Tedeschi \& Calhoun, 2004 ; Cadell, Suarez \& Hemsworth, 2015 21-items scale. range for the full scale: \[0-105\]. The total is the sum of the 21 items 5 underscores are computed: changes in relationships (7 items, \[0-35\]) , spirituality (2 items, \[0-10\]) , personal strength (4 items, \[0-20\]), new possibilities (5 items, \[0-25\]),life satisfaction (3 items, \[0-15\]). More the score is high, more the level of post traumatic growth is high. No pathological score.

Socio-demographic informations: socioprofessional category

时间窗: 15 days before hospitalization

what a job it is

complementary informations: sleeping hours

时间窗: 15 days before hospitalization

they indicate it in number of sleeping hours for each night

complementary informations: dietary regime

时间窗: 15 days before hospitalization

2 propositions: YES or NO

Physical health informations (PROMISE database)

时间窗: 7 months after hospitalization

All these informations are extracted from PROMISE database : type and stage of hemopathy, type of conditioning (myeloablative, non-myeloablative). During follow-up, transplant intake, acute and chronic GvHD, infections, number of days in hospital, relapse and death (and cause)

Social Provisions scale revised

时间窗: At the 7th day of hospitalization

Perceived social support assessment in different settings (attachment, reliable alliance, social integration, reassurance of worth, guidance, ...) Cutrona \& Russel, 1987 24-items scale. Range for the full scale \[16-96\]. 4 items for each subscale (range for each subscales: \[4-16\]). The total score is the sum of all subscales scores. More the score is high, more the social support is high. No pathological score.

Positive orientation to others scale

时间窗: 6 months after hospitalization

Assessment of positive orientation to others level. Braithwaite \& Law, 1985 13-items scale. range for the full scale: \[13-91\]. The total score is the sum of the 13 items. More the score is high, more the orientation to others level is high. No pathological score

Intrinsic spirituality scale

时间窗: 6 months after hospitalization

Assessment of spirituality dimension. How much people think spirituality is important for them? Hodge, 2003 6-items scale. Range for the full scale: \[0-60\]. The total score is the sum of the 6 items. More the score is high, more the intrinsic spirituality level is high. No pathological score

Satisfaction with Life Scale

时间窗: 6 months after hospitalization

Assessment of cognitive component of happiness. This is a general assessment of people life. Diener et al.,1985 5-items scale. Range for the full scale: \[5-35\]. \[5-9\] : extremely dissatisfied; \[10-14\]: dissatisfied; \[15-19\]: slightly dissatisfied; 20: neutral; \[21-25\]: slightly satisfied; \[26-30\]: satisfied; \[31-35\]: extremely satisfied.

Stress version of post traumatic stress disorder scale

时间窗: 6 months after hospitalization

Assessment of traumatism level and traumatic symptomatology (e.g. repetition of traumatic event)Weathers et al., 1993 17-items scale. Range for the full scale: \[17-85\]. The total is the sum of the 17 items. 3 underscores are computed: "repetition of the traumatic event" (5 items, \[5-25\]), "avoidance" (7 items, \[5-35\]), "neurovegetative hyperactivity" (5 items, \[5-25\]). A score beyond 44 is considered as pathological score.

Socio-demographic informations: Age

时间窗: 15 days before hospitalization

year

Socio-demographic informations: sex

时间窗: 15 days before hospitalization

2 propositions: man or woman

complementary informations: alcohol consumption

时间窗: 15 days before hospitalization

2 propositions: YES or NO

complementary informations: cigarette consumption

时间窗: 15 days before hospitalization

2 propositions: YES or NO

complementary informations: physical activity

时间窗: 15 days before hospitalization

2 propositions: YES or NO