NCT01988532已完成不适用
Impact of Pain on Functional Impairment and Quality of Life in Adults With Hemophilia
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 381
- 试验地点
- 1
- 主要终点
- Prevalence of acute (bleed-related) pain (percentage)
研究概览
简要总结
This study is conducted in the United States of America (USA). The aim of the study is to assess the impact of pain on functional impairment and quality of life in adult persons with hemophilia (PWH) with and without inhibitors with joint bleeding.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Cross Sectional
入排标准
- 性别
- Male
- 接受健康志愿者
- 否
入选标准
- •Adult males able to provide consent and complete a survey in English
- •Congenital hemophilia A or B with or without inhibitors with any history of joint bleeding or joint pain
- •Presentation at the treatment center for a comprehensive annual visit where joint range of motion will be obtained
- •Informed consent obtained before any study-related activities. (Study-related activities are any procedure related to recording of data according to the protocol)
排除标准
- •Previous participation in this study
结局指标
主要结局
Prevalence of acute (bleed-related) pain (percentage)
时间窗: At the first visit (only one study visit)
Prevalence of chronic (arthritic) pain (percentage)
时间窗: At the first visit (only one study visit)
次要结局
未报告次要终点
研究者
研究点 (1)
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