Education & Care in RARE: Efficacy of Targeted Psychoeducational Intervention Among Pediatric Rare Disease Patients

计划入组 100 人 · 首次发布于 2024 年 12 月 11 日

Swiss Rare Disease Registry (SRDR)

计划入组 500,000 人 · 首次发布于 2022 年 1 月 5 日

Multi-center Clinical Study on the Diagnosis and Treatment Management of Rare Neurological Disease in Children

首次发布于 2018 年 8 月 28 日

undisclosed rare disease therapeutic (rare disease/eye disease/skin disease)

undisclosed pediatric rare disease therapeutic (rare disease/kidney disease)

undisclosed pediatric rare disease therapeutic (rare disease/immune disease)

Rare Disease Research, LLC

CURE RARE DISEASE, INC.

United States

Rare Disease Therapeutics, Inc.

United States

NORD Expands Rare Disease Centers of Excellence Network with Three New Institutions

WakeMed-Atrium Health Merger Faces Mounting Opposition Over Cost and Charity Care Concerns

Global Genes Partners with Citizen Health to Power RARE-X Rare Disease Data Platform