Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life
Recruiting
- Conditions
- Retinoblastoma
- Interventions
- Behavioral: Questionnaires
- Registration Number
- NCT00639301
- Lead Sponsor
- Memorial Sloan Kettering Cancer Center
- Brief Summary
The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- RECRUITING
- Sex
- All
- Target Recruitment
- 1000
Inclusion Criteria
- Patient diagnosed with retinoblastoma at any age
- At least five years from completion of all retinoblastoma-directed therapy
- Able to provide informed consent and/or assent, if indicated
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Exclusion Criteria
Not provided
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Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Arm && Interventions
Group Intervention Description 1 Questionnaires Long term survivors of retinoblastoma
- Primary Outcome Measures
Name Time Method To describe the long-term health status of long term survivors of childhood retinoblastoma, General medical outcomes, vision status, Rates of second cancer conclusion of study
- Secondary Outcome Measures
Name Time Method To describe the quality of life and psychosocial functioning of long term survivors of childhood retinoblastoma Fear of disease recurrence/development of other cancers, Health behaviors, Body image, etc. conclusion of study
Trial Locations
- Locations (1)
Memorial Sloan Kettering Cancer Center
🇺🇸New York, New York, United States