Understanding Parental Stress and Quality of Life in Families of Children With Diplegic Cerebral Palsy: Key Influencing Factors
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Stress
- Sponsor
- Sinai University
- Enrollment
- 100
- Locations
- 1
- Primary Endpoint
- Parental stress
- Status
- Completed
- Last Updated
- last year
Overview
Brief Summary
PURPOSE:
To estimate the relationships between the child, parents, and family factors and parent stress and QoL among parents of children with diplegic CP.
BACKGROUND:
Cerebral palsy (CP) is considered the primary reason of motor impairment among children worldwide. Compared to parents of typically developing children, parents of children with cerebral palsy (CP) experience higher levels of stress and reduced quality of life (QoL).
HYPOTHESES:
There is no relation between the level of functional impairment among children with diplegic CP and their parental stress and QOL.
RESEARCH QUESTION:
Is there a relationship between the level of functional impairment among children with diplegic CP and the degree of their parental stress and quality of life?
Investigators
Alaa Noureldeen Kora
Lecturer at the Department of Physical Therapy for Pediatrics and Pediatric Surgery
Sinai University
Eligibility Criteria
Inclusion Criteria
- •Parents of children between the ages of 2 and 4.8 who had been diagnosed with diplegic CP.
- •Parents of children with diplegic CP who were in a stable clinical and medical state.
Exclusion Criteria
- •parents of children with behavioral problem.
- •a history of ongoing heart disease
- •a botulinum toxin injection within the six months previous to the study
- •chronic chest disease
- •significant visual or auditory impairment
- •parents with limited literacy
Outcomes
Primary Outcomes
Parental stress
Time Frame: 1 day - one session
Parental stress will be measured by the Arabic version of the parent stress index-short form (PSI-SF) . PSI-SF is a self-reported questionnaire with 36 items rated on a 5-point Likert scale (strongly agree or strongly disagree). The score of the measure ranged between 36 and 180, and a lower score indicates a better outcome.
Secondary Outcomes
- Quality of life of parents(1 day - one session)
- Gross motor impairments(1 day - one session)