Understanding Parental Stress and Quality of Life in Families of Children With Diplegic Cerebral Palsy: Key Influencing Factors
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 100
- 试验地点
- 1
- 主要终点
- Parental stress
研究概览
简要总结
PURPOSE:
To estimate the relationships between the child, parents, and family factors and parent stress and QoL among parents of children with diplegic CP.
BACKGROUND:
Cerebral palsy (CP) is considered the primary reason of motor impairment among children worldwide. Compared to parents of typically developing children, parents of children with cerebral palsy (CP) experience higher levels of stress and reduced quality of life (QoL).
HYPOTHESES:
There is no relation between the level of functional impairment among children with diplegic CP and their parental stress and QOL.
RESEARCH QUESTION:
Is there a relationship between the level of functional impairment among children with diplegic CP and the degree of their parental stress and quality of life?
研究设计
- 研究类型
- Observational
- 观察模型
- Family Based
- 时间视角
- Cross Sectional
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Parents of children between the ages of 2 and 4.8 who had been diagnosed with diplegic CP.
- •Parents of children with diplegic CP who were in a stable clinical and medical state.
排除标准
- •parents of children with behavioral problem.
- •a history of ongoing heart disease
- •a botulinum toxin injection within the six months previous to the study
- •chronic chest disease
- •significant visual or auditory impairment
- •parents with limited literacy
结局指标
主要结局
Parental stress
时间窗: 1 day - one session
Parental stress will be measured by the Arabic version of the parent stress index-short form (PSI-SF) . PSI-SF is a self-reported questionnaire with 36 items rated on a 5-point Likert scale (strongly agree or strongly disagree). The score of the measure ranged between 36 and 180, and a lower score indicates a better outcome.
次要结局
- Quality of life of parents(1 day - one session)
- Gross motor impairments(1 day - one session)
研究者
Alaa Noureldeen Kora
Lecturer at the Department of Physical Therapy for Pediatrics and Pediatric Surgery
Sinai University