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Clinical Trials/NCT06029192
NCT06029192
Recruiting
Not Applicable

Diastolic Function in Myotonic Dystrophy Type 1

Centre d'Investigation Clinique et Technologique 8051 site in 1 country500 target enrollmentJune 2, 2023

Overview

Phase
Not Applicable
Intervention
Not specified
Conditions
Diastolic Dysfunction
Sponsor
Centre d'Investigation Clinique et Technologique 805
Enrollment
500
Locations
1
Primary Endpoint
mortality
Status
Recruiting
Last Updated
2 years ago

Overview

Brief Summary

Myotonic dystrophy type 1 (DM1) is a neuromuscular disorder in relation with an unstable expansion of CTG repeat. Patients with DM1 are at risk of arrhythmia and conduction disorders. Mortality are mainly related to respiratory failure and sudden death. Patients with DM1 may suffer from obesity, arterial hypertension, diabetes mellitus and sleep apnea. These comorbidities are classically associated with left ventricular diastolic dysfunction (DD) .

The investigators aim to assess the prevalence of left ventricular diastolic dysfunction in patients with myotonic dystrophy type 1 , the distribution of DD grading as well as the long-term prognosis of DM1 patients with a left ventricular diastolic dysfunction.

Registry
clinicaltrials.gov
Start Date
June 2, 2023
End Date
November 1, 2023
Last Updated
2 years ago
Study Type
Observational
Sex
All

Investigators

Sponsor
Centre d'Investigation Clinique et Technologique 805
Responsible Party
Principal Investigator
Principal Investigator

Abdallah FAYSSOIL

Associate Professor

Centre d'Investigation Clinique et Technologique 805

Eligibility Criteria

Inclusion Criteria

  • patients with genetic proven myotonic dystrophy type 1
  • who experienced a Doppler- Echocardiography including an assessment of the left ventricular diastolic function

Exclusion Criteria

  • wall motion basal abnormalities
  • significant valvular disease

Outcomes

Primary Outcomes

mortality

Time Frame: 7 years

Secondary Outcomes

  • Incidence of arrhythmia(7 years)
  • acute heart failure(7 years)

Study Sites (1)

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