Rheumatoid Purpura in Children: a Multicenter Observational Study of Pediatric Emergency Department Management and Follow-up by Primary Care Physicians
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Rheumatoid Purpura
- Sponsor
- Groupe Hospitalier de la Region de Mulhouse et Sud Alsace
- Enrollment
- 66
- Locations
- 2
- Primary Endpoint
- Compliance with the recommendations for the management of rheumatoid purpura
- Status
- Completed
- Last Updated
- 5 months ago
Overview
Brief Summary
The main objective of this study is to describe the management of children with rheumatoid purpura from admission to the pediatric emergency room to follow-up by primary care physicians after hospital discharge.
Detailed Description
Secondary objectives The secondary objective is to assess general practitioners current knowledge and practice of the condition and potential barriers to monitoring and follow-up by general practitioners. Conduct of research Children diagnosed with rheumatoid purpura within the past 2 years at the 3 participating sites will be included in the study if parental authority holders do not object. Patients will be identified through the Medical Information Department of each hospital. Parents will be contacted - first by mail, then by phone - to request permission to collect the child's medical data from medical records, and to retrieve information on the surveillance and follow-up of the disease by general practitioners up to two years after diagnosis.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Underaged patient diagnosed with rheumatoid purpura during a visit to the pediatric emergencies of Mulhouse, Colmar and Strasbourg
- •No objection to the study from the two holders of parental authority
Exclusion Criteria
- •\- Patient followed in the context of a genetic or malformative pathology, an immune deficiency, or a cancer
Outcomes
Primary Outcomes
Compliance with the recommendations for the management of rheumatoid purpura
Time Frame: Up to two years after hospital discharge
Secondary Outcomes
- Knowledge assessment questionnaire regarding rheumatoid purpura(At the beginning of the study)