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Home Intervention and Social Precariousness in Childhood Diabetes

Not Applicable
Completed
Conditions
Diabetes Mellitus, Type 1
Interventions
Behavioral: Intervention by a pediatric nurse at the child's home
Registration Number
NCT04530292
Lead Sponsor
University Hospital, Bordeaux
Brief Summary

A pilot study of children whose families are in a precarious situation, who will benefit from a targeted at-home intervention by a pediatric nurse. Visits will be organized during the first, fourth and sixth months after the discovery of diabetes. The HbA1C measured 12 months after the diabetes diagnosis will be compared to the HbA1C obtained in an historical cohort that did not receive at-home therapeutic education.

Detailed Description

The EPICES score is an individual indicator of precariousness associated with indicators of access to health care and indicators of health. For this score, 30 is considered as the precariousness threshold. It is collected during the follow-up of our cohort of diabetic children and the data is obtained from the parent accompanying the child.

In 2016, we found in this cohort that a context of precariousness was associated with a very poor result of glycated hemoglobin (HbA1C) (Lamaraud J et al., 2017). The imbalance of diabetes was detectable as early as one year after diagnosis and persisted despite additional educational interventions. Therapeutic education allows families in precarious situations to acquire, during the initial hospitalization, knowledge that meets the security objectives and is adapted to the care of their child. However, we have noticed that it can be difficult for some families to apply this knowledge when they are back in their home.

Thus, we are planning to set up a coordinated intervention by a pediatric nurse at the child's home to support the parents in the implementation of the theoretical knowledge acquired at the hospital.

Three home visits will be set up by a nurse during the first six months of the discovery of diabetes in the child. These visits will be organized during the first, fourth and sixth months after the discovery of diabetes and last about 2 hours each time. An additional visit may be set up according to the needs of families. The HbA1C measured 12 months after the diabetes diagnosis will be compared to the HbA1C obtained in an historical cohort that did not receive at-home therapeutic education.

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
29
Inclusion Criteria

Not provided

Exclusion Criteria

Not provided

Study & Design

Study Type
INTERVENTIONAL
Study Design
PARALLEL
Arm && Interventions
GroupInterventionDescription
intervention by a pediatric nurse at the child's homeIntervention by a pediatric nurse at the child's homeThe pediatric nurse will visit the patient's home 3 times during the first six months of the discovery of diabetes in children. These visits will be organized during the first, fourth and sixth months after the discovery of diabetes and last about 2 hours each time. An additional visit can be organized according to the needs of families. The pediatric nurse will ensure the implementation of learning in terms of drug therapy (modality of insulin administration, adaptation of insulin doses) and diet, according to the knowledge acquired during the initial hospitalization. She will offer her help to the families to make a connection with the school and after-school activities of the child. In addition to these visits, the child and his family will come to the hospital as part of the regular medical follow-up: consultations with the pediatric diabetologist at the 3rd and 6th month and at 1 year of the discovery of diabetes.
Primary Outcome Measures
NameTimeMethod
Measurement of HbA1c (%) one year after the discovery of diabetes.12 months after the diabetes diagnosis

The Glycated hemoglobin (HbA1C) measured 12 months after the diabetes diagnosis

Secondary Outcome Measures
NameTimeMethod
Percentage of time spent in the target for patients with Freestyle sensorduring the last month of the study, between 11 and 12 months after the diabetes diagnostic

Percentage of time spent in the target (subcutaneous glucose measurement between 70 and 180 mg/dl) during the last month of the study for patients with Freestyle sensor

Evaluation of the satisfaction with the intervention of the children and parents12 months after the diabetes diagnosis

Evaluation of the satisfaction with the intervention of the children and parents, measured with a standard visual analogue scale at the end of the intervention of the pediatric nurse

Evaluation of the satisfaction with the intervention of the pediatric endocrinology department's caregivers12 months after the diabetes diagnosis

Evaluation of the satisfaction of the pediatric endocrinology department's caregivers (pediatric diabetologists, nurses, dieticians) with the intervention, measured with a standard visual analogue scale at the end of the intervention of the pediatric nurse

Unscheduled hospital visits in the context of T1DThrough study completion, 12 months after the diabetes diagnosis

Number of emergency visits and hospitalizations

Number of visits actually carried out in the interventional arm12 months after the diabetes diagnosis

3 visits are planned but an additional visit may be set up according to the needs of families.

It is also possible that some visits cannot take place. The number of visits actually made will therefore be recorded.

Evaluation of the satisfaction with the intervention of the external partners12 months after the diabetes diagnosis

Evaluation of the satisfaction of the external partners (doctor or pediatrician, providers) with the intervention, measured with a standard visual analogue scale at the end of the intervention of the pediatric nurse

Percentage of time spent wearing the sensor for patients with Freestyle sensorduring the last month of the study, between 11 and 12 months after the diabetes diagnostic

Percentage of time spent wearing the sensor during the last month of the study for patients with Freestyle sensor

Trial Locations

Locations (1)

Chu Bordeaux

🇫🇷

Bordeaux, France

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