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FUTURE 3 Study Extension

Phase 3
Completed
Conditions
Pulmonary Arterial Hypertension
Interventions
Registration Number
NCT01338415
Lead Sponsor
Actelion
Brief Summary

The objectives of the FUTURE 3 Study Extension are to evaluate the long-term safety, tolerability and efficacy of the pediatric formulation of bosentan two versus three times a day in children with Pulmonary Arterial Hypertension (PAH).

Detailed Description

Not available

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
58
Inclusion Criteria
  1. Patients who completed the FUTURE 3 core study (AC-052-373) or prematurely discontinued due to PAH-progression, if bosentan was not permanently discontinued
  2. Patients who tolerated bosentan pediatric formulation and for whom bosentan is considered beneficial at the end of the FUTURE 3 core study (AC-052-373)
  3. Signed informed consent by the parents or the legal representatives prior to any study-mandated procedure.
Exclusion Criteria
  1. Known intolerance or hypersensitivity to bosentan or any of the excipients of the dispersible bosentan tablet
  2. Any clinically significant laboratory abnormality that precludes continuation of bosentan therapy
  3. Pregnancy
  4. AST and/or ALT values > 3 times the upper limit of normal range (ULN)
  5. Moderate to severe hepatic impairment, i.e., Child-Pugh Class B or C
  6. Premature and permanent study drug discontinuation during the FUTURE 3 core study (AC-052-373)
  7. Any major violation of the FUTURE 3 core study (AC-052-373) protocol.

Study & Design

Study Type
INTERVENTIONAL
Study Design
PARALLEL
Arm && Interventions
GroupInterventionDescription
bosentan 2mg/kg b.i.d.BosentanPatients who received 2 mg/kg bosentan twcie daily (b.i.d.) during the FUTURE 3 core study and continued with the same dose regimen during the extension study
bosentan 2mg/kg t.i.d.BosentanPatients who received 2 mg/kg bosentan 3 times a day (t.i.d.) during the FUTURE 3 core study and continued with the same dose regimen during the extension study
Primary Outcome Measures
NameTimeMethod
Treatment Emergent Adverse Events (AEs) up to 7 Days After Permanent Study Drug DiscontinuationUp to 62 weeks in average

This is the total number of subjects with at least one adverse event (serious or not serious) whether or not causally related to the study drug and presented cumulatively in the FUTURE 3 and FUTURE 3 Extension study. NOTE: FUTURE 3 extension study was exploratory and no primary efficacy and safety endpoints were defined in the protocol. So, this safety outcome measure was selected and reported as primary endpoint here.

Secondary Outcome Measures
NameTimeMethod

Trial Locations

Locations (72)

CARE Hospitals, Cardiology Dep. Hyderabad - Site 5302

🇮🇳

Hyderabad, India

Institut za zdravstvenu zaštitu majke i deteta Srbije "Dr Vukan Čupić", Služba za ispitivanje i lečenje bolesti srca i krvnih sudova - Site 3902

🇷🇸

Belgrade, Serbia

The Republican Scientific-Practical Center "Cardiology" - Site 3001

🇧🇾

Minsk, Belarus

Shanghai Children's Medical Center - Site 5102

🇨🇳

Shanghai, China

CHU de Toulouse - Hôpital des Enfants, Service de Cardiologie Pédiatrique - Site 2202

🇫🇷

Toulouse, France

Fakultní nemocnice v Motole, dětské kardiocentrum - Site 3301

🇨🇿

Prague, Czechia

Gover INS - Scientific Practical Cardiovascular Pediatric Center - MOH Ukraine - Site 4102

🇺🇦

Kiev, Ukraine

Instituto Nacional de Cardiologia (INC) Ignacio Chavez - Site 8401

🇲🇽

Mexico City, Mexico

Moscow Scientific Research Institute for Pediatrics and Childrens Surgery of Rosmedtechnologies - Site 3804

🇷🇺

Moscow, Russian Federation

Federal State Institution "Federal center of Heart, Blood and Endocrinology named after V.A.Almazov Rosmedtekhnologies" - Site 3802

🇷🇺

St. Petersberg, Russian Federation

Division of Paediatric Cardiology, Steve Biko Academic Hospital - Site 6002

🇿🇦

Pretoria, South Africa

Hospital Universitatario Vall d'Hebron, Neumologia - Site 1907

🇪🇸

Barcelona, Spain

Hospital Universitario La Paz - Paediatric Cardiology Department - Site 1906

🇪🇸

Madrid, Spain

Cardiovascular Institute and Fuwai Hospital

🇨🇳

Beijing, China

Hopital Necker-Enfants Malades, Service de Cardiologie Pédiatrique - Site 2201

🇫🇷

Paris, France

The Children's Hospital - Site 9102

🇺🇸

Aurora, Colorado, United States

Children's National Medical Center - Site 9104

🇺🇸

Washington, District of Columbia, United States

Columbia University Medical Center Children's Hospital of New York Presbyterian - Site 9101

🇺🇸

New York, New York, United States

Royal Children's Hospital Melbourne, Cardiology - Site 5001

🇦🇺

Parkville, Australia

Justus-Liebig-Universität Giessen, Kinderherzzentrum - Site 1403

🇩🇪

Giessen, Germany

Università Degli Studi di Padova - Dipartimento di Pediatria - Servizio di Cardiologia Pediatrica - Site 1501

🇮🇹

Padova, Italy

Deutsches Herzzentrum Kinderkardiologie - Site 1401

🇩🇪

Berlin, Germany

Universitätsklinikum Bonn Abteilung für Kinderkardiologie - Site 1404

🇩🇪

Bonn, Germany

Schneider Children's Medical Center- Institute of pediatric cardiology - Site 7101

🇮🇱

Petach Tikvah, Israel

Uniwersyteckie Centrum Kliniczne Klinika Kardiologii Dziecięcej i Wad Wrodzonych Serca - Site 3604

🇵🇱

Gdansk, Poland

Ospedale Pediatrico "Bambino Gesù" - Dipartimento Medico Chirurgico di Cardiologia Pediatrica - Site 1502

🇮🇹

Rome, Italy

Wojewódzki Szpital Specjalistyczny we Wrocławiu Oddział Kardiologii Dziecięcej z pododdziałem Intensywnego Nadzoru Kardiologicznego - Site 3605

🇵🇱

Wroclaw, Poland

RAMS Institution, Research Institute for complex issues of cardiovascular diseases, Siberian branch of the Russian Academy of Medical Sciences - Site 3805

🇷🇺

Kemerovo, Russian Federation

Scientific Center of Cardiovascular Surgery named after A.N.Bakulev of the RAMS - Site 3803

🇷🇺

Moscow, Russian Federation

State Educational Institution of Higher Professional Education "Saint Petersburg State Pediatric Medical Academy of Roszdrav" - Site 3801

🇷🇺

St. Petersburg, Russian Federation

Univerzitetska dečja klinika, Služba za kardiologiju - Site 3901

🇷🇸

Belgrade, Serbia

Department of Paediatric Cardiology University of the Free State - Site 6001

🇿🇦

Bloemfontein, South Africa

Clinical Diagnostic Center - Pediatric Cardiovascular and ANES and Intensive Care Department - Site 4103

🇺🇦

Dnepropetrovsk, Ukraine

Gusak Ins Urgent and Recovery SUR AMS - Cardiovascular Rehabilitation Pediatric Department - Site 4101

🇺🇦

Donetsk, Ukraine

Szegedi Tudományegyetem ÁOK Szent-Györgyi Albert Klinikai Központ, Gyermekgyógyászati Klinika és Gyermekegészségügyi Központ - Site 3402

🇭🇺

Szeged, Hungary

Gottsegen György Országos Kardiológiai Intézet, Gyermekszív Központ, Gyermek Kardiológiai osztály - Site 3401

🇭🇺

Budapest, Hungary

The Children's Hospital - Site 9102

🇺🇸

Aurora, Colorado, United States

Children's National Medical Center - Site 9104

🇺🇸

Washington, District of Columbia, United States

Columbia University Medical Center Children's Hospital of New York Presbyterian - Site 9101

🇺🇸

New York, New York, United States

Royal Children's Hospital Melbourne, Cardiology - Site 5001

🇦🇺

Parkville, Australia

The Republican Scientific-Practical Center "Cardiology" - Site 3001

🇧🇾

Minsk, Belarus

Cardiovascular Institute and Fuwai Hospital

🇨🇳

Beijing, China

Shanghai Children's Medical Center - Site 5102

🇨🇳

Shanghai, China

Fakultní nemocnice v Motole, dětské kardiocentrum - Site 3301

🇨🇿

Prague, Czechia

Hopital Necker-Enfants Malades, Service de Cardiologie Pédiatrique - Site 2201

🇫🇷

Paris, France

CHU de Toulouse - Hôpital des Enfants, Service de Cardiologie Pédiatrique - Site 2202

🇫🇷

Toulouse, France

Deutsches Herzzentrum Kinderkardiologie - Site 1401

🇩🇪

Berlin, Germany

Universitätsklinikum Bonn Abteilung für Kinderkardiologie - Site 1404

🇩🇪

Bonn, Germany

Justus-Liebig-Universität Giessen, Kinderherzzentrum - Site 1403

🇩🇪

Giessen, Germany

Gottsegen György Országos Kardiológiai Intézet, Gyermekszív Központ, Gyermek Kardiológiai osztály - Site 3401

🇭🇺

Budapest, Hungary

Szegedi Tudományegyetem ÁOK Szent-Györgyi Albert Klinikai Központ, Gyermekgyógyászati Klinika és Gyermekegészségügyi Központ - Site 3402

🇭🇺

Szeged, Hungary

CARE Hospitals, Cardiology Dep. Hyderabad - Site 5302

🇮🇳

Hyderabad, India

Schneider Children's Medical Center- Institute of pediatric cardiology - Site 7101

🇮🇱

Petach Tikvah, Israel

Università Degli Studi di Padova - Dipartimento di Pediatria - Servizio di Cardiologia Pediatrica - Site 1501

🇮🇹

Padova, Italy

Ospedale Pediatrico "Bambino Gesù" - Dipartimento Medico Chirurgico di Cardiologia Pediatrica - Site 1502

🇮🇹

Rome, Italy

Instituto Nacional de Cardiologia (INC) Ignacio Chavez - Site 8401

🇲🇽

Mexico City, Mexico

Uniwersyteckie Centrum Kliniczne Klinika Kardiologii Dziecięcej i Wad Wrodzonych Serca - Site 3604

🇵🇱

Gdansk, Poland

Wojewódzki Szpital Specjalistyczny we Wrocławiu Oddział Kardiologii Dziecięcej z pododdziałem Intensywnego Nadzoru Kardiologicznego - Site 3605

🇵🇱

Wroclaw, Poland

RAMS Institution, Research Institute for complex issues of cardiovascular diseases, Siberian branch of the Russian Academy of Medical Sciences - Site 3805

🇷🇺

Kemerovo, Russian Federation

Scientific Center of Cardiovascular Surgery named after A.N.Bakulev of the RAMS - Site 3803

🇷🇺

Moscow, Russian Federation

Moscow Scientific Research Institute for Pediatrics and Childrens Surgery of Rosmedtechnologies - Site 3804

🇷🇺

Moscow, Russian Federation

Department of Paediatric Cardiology University of the Free State - Site 6001

🇿🇦

Bloemfontein, South Africa

Division of Paediatric Cardiology, Steve Biko Academic Hospital - Site 6002

🇿🇦

Pretoria, South Africa

Hospital Universitatario Vall d'Hebron, Neumologia - Site 1907

🇪🇸

Barcelona, Spain

Clinical Diagnostic Center - Pediatric Cardiovascular and ANES and Intensive Care Department - Site 4103

🇺🇦

Dnepropetrovsk, Ukraine

Federal State Institution "Federal center of Heart, Blood and Endocrinology named after V.A.Almazov Rosmedtekhnologies" - Site 3802

🇷🇺

St. Petersberg, Russian Federation

State Educational Institution of Higher Professional Education "Saint Petersburg State Pediatric Medical Academy of Roszdrav" - Site 3801

🇷🇺

St. Petersburg, Russian Federation

Univerzitetska dečja klinika, Služba za kardiologiju - Site 3901

🇷🇸

Belgrade, Serbia

Institut za zdravstvenu zaštitu majke i deteta Srbije "Dr Vukan Čupić", Služba za ispitivanje i lečenje bolesti srca i krvnih sudova - Site 3902

🇷🇸

Belgrade, Serbia

Hospital Universitario La Paz - Paediatric Cardiology Department - Site 1906

🇪🇸

Madrid, Spain

Gusak Ins Urgent and Recovery SUR AMS - Cardiovascular Rehabilitation Pediatric Department - Site 4101

🇺🇦

Donetsk, Ukraine

Gover INS - Scientific Practical Cardiovascular Pediatric Center - MOH Ukraine - Site 4102

🇺🇦

Kiev, Ukraine

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