The understanding of end-of-life dignity in palliative care: has it recently changed?
- Conditions
- end-of-life dignity, palliative cancer patients
- Registration Number
- DRKS00033930
- Lead Sponsor
- Philipps-Universität Marburg
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 90
patients:
- the presence of advanced cancer in the context of palliative care
- Consent of the patient to participate in the study
- Sufficient knowledge of German
- Capacity of the patient to give informed consent
Relatives and staff:
- age greater than/equal to 18
- Sufficient knowledge of German
- Ability to give consent
- Consent to participate
patients:
- Expected massive deterioration in the patient's state of health/cognitive abilities
- Insufficient knowledge of German
- Lack of capacity to consent (legal guardianship)
- Dementia or delirium or states of consciousness similar to dementia or delirium
- Other cognitive symptoms that restrict the ability to give consent (e.g. increased fatigue)
- Distress-Score > 8
Relatives and staff:
- Insufficient knowledge of German
- No capacity to give consent
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method understanding of end-of-life dignity assessed using a questionnaire specifically developed for the study based on the dignity model by Chochinov (2002) as well as the assessment of the relevance of different areas of dignity (using a likertscale) at one measuring point.
- Secondary Outcome Measures
Name Time Method communication about dignity, dying and death; dignity-related distress; fear of dying and death; anxiety an depression; experiences during the SARS-CoV-2 pandemic; current distress