Investigation of the Effectiveness of Cognitive Exercise Therapy Approach (BETY) in Juvenile Idiopathic Arthritis
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 52
- 试验地点
- 2
- 主要终点
- Juvenile Arthritis Biopsychosocial Questionnaire-JAB-Q-Patient
研究概览
简要总结
Cognitive Exercise Therapy Approach (*Bilişsel Egzersiz Terapi Yaklaşımı*-BETY), an innovative method developed for adults with rheumatism, aims to promote behavioral change and prevent social isolation by focusing on exercises that provide pain management and functional gains. BETY also recognizes the importance of family education in achieving these goals. However, there is a need for studies on exercise approaches that fit the biopsychosocial model, such as BETY in childhood rheumatic diseases.
BETY is an innovative exercise approach based on the biopsychosocial model that aims to change the patient's cognitions through exercise, specifically developed for patients with rheumatism. This approach includes function-oriented trunk stabilization exercises, chronic pain management, and authentic dance therapy training targeting positive cognitive displacement. It is carried out in a routinized structure that continues for years on a face-to-face basis in groups and individually.
Interventions that provide physical and psychosocial support are needed in childhood rheumatic diseases. Learning to exercise the muscles surrounding the joints at the proper traction angle through exercise with BETY, gaining the ability to manage chronic pain during the day, gaining positive cognitive displacement skills, and having the opportunity to socialize through both individual and group exercises constitute the basis of the intervention.
研究设计
- 研究类型
- Interventional
- 分配方式
- Non Randomized
- 干预模型
- Parallel
- 主要目的
- Treatment
- 盲法
- None
入排标准
- 年龄范围
- 7 Years 至 18 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Diagnosed with JIA,
- •Aged between 7 and 18,
- •Individuals who volunteered to participate in the study.
排除标准
- •Patients with advanced heart/lung/liver/kidney disease, neurologic disease and malignancies,
- •Individuals who have undergone major orthopedic surgery.
结局指标
主要结局
Juvenile Arthritis Biopsychosocial Questionnaire-JAB-Q-Patient
时间窗: Three months
Developed in 2018 in Turkey, it is a patient/parent-centered measurement method that helps to evaluate the biopsychosocial aspects of the patient, such as disease activity, posture, functional and psychosocial status, fatigue, performance at school. The results obtained from a total of 33 questions are used to evaluate the functional status of children, while their psychosocial status is recorded according to their answers to 21 questions. Scored between 0-164. A high score indicates a poor psychosocial status.
Juvenile Arthritis Biopsychosocial Questionnaire-JAB-Q-Family
时间窗: Three months
JAB-Q is used to assess the biopsychosocial status of patients and their parents. JAB-Q is a multidimensional questionnaire with a parent (family) form. The questionnaire developed in Turkish is completed by one of the parents/persons responsible for the child. The family form assesses the biopsychosocial status of the parent from their perspective and scores between 0 and 38. Higher scores indicate worse biopsychosocial status.
Juvenile Arthritis Biopsychosocial Questionnaire-JAB-Q-Patient
时间窗: Three months
Developed in 2018 in Turkey, it is a patient/parent-centered measurement method that helps to evaluate the biopsychosocial aspects of the patient, such as disease activity, posture, functional and psychosocial status, fatigue, performance at school. The results obtained from a total of 33 questions are used to evaluate the functional status of children, while their psychosocial status is recorded according to their answers to 21 questions. Scored between 0-164. A high score indicates a poor psychosocial status.
Juvenile Arthritis Biopsychosocial Questionnaire-JAB-Q-Family
时间窗: Three months
JAB-Q is used to assess the biopsychosocial status of patients and their parents. JAB-Q is a multidimensional questionnaire with a parent (family) form. The questionnaire developed in Turkish is completed by one of the parents/persons responsible for the child. The family form assesses the biopsychosocial status of the parent from their perspective and scores between 0 and 38. Higher scores indicate worse biopsychosocial status.
次要结局
- Pain Catastrophizing Scale - Parent Version (PCS-P)(Three months)
- Child and Adolescent Scale of Participation (CASP):(Three months)
- Childhood Health Assessment Questionnaire (CHAQ)(Three months)
- Pain Catastrophising Scale-Child (PPS-C)(Three months)
- Pain Catastrophizing Scale - Parent Version (PCS-P)(Three months)
- Child and Adolescent Scale of Participation (CASP):(Three months)
- Childhood Health Assessment Questionnaire (CHAQ)(Three months)
- Pain Catastrophising Scale-Child (PPS-C)(Three months)
研究者
Orkun Tüfekçi
Principal Investigator, PT, PhD(c)
Hacettepe University