Cell Phone Application to Help Adolescents and Young Adults in Their Therapeutic and Educational Journey
- Conditions
- Cancer
- Registration Number
- NCT05617131
- Lead Sponsor
- University Hospital, Strasbourg, France
- Brief Summary
About 2000 cancers/year in France are diagnosed in Adolescents and Young Adults (15-25 years old, AYA). The cancer plans and the INCA recommend support during and after cancer, taking into account both medical and psychosocial specificities related to age (supportive care, school learning/training and professional integration, fertility preservation, therapeutic education, addictology, sexology...). The care offered is often heterogeneous for these AYAs in transition between the pediatric and adult worlds. They may be cared for either in pediatric oncology units or in adult structures. In this context, an AYA team has been developed in the Strasbourg center, led by a Nurse Coordinator (IDEC), social workers, psychologists and doctors. Thus, the young patients and their relatives are accompanied by professionals during their therapeutic care. In spite of this global care and closer to the patient, it is still necessary to find connected health tools for these AYA.
- Detailed Description
In this context, the Strasbourg team has initiated the development of a digital application compatible for any cell phone OnKO-Tips \&Tricks meeting these criteria of necessity. The application is currently in its final phase and requires validation by patients through a feasibility study that will last 6 months. Thus, all patients currently followed or newly diagnosed with liquid or solid cancer and aged between 15 and 25 years old will be included and will have the opportunity to test the application, its practicality as well as its current use and in particular its expected benefits for an optimization of our ETP program.
Recruitment & Eligibility
- Status
- RECRUITING
- Sex
- All
- Target Recruitment
- 60
Not provided
Not provided
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Collection of the global score of the MAUQ questionnaire (item 1 to 21), filled in by the patients after 6 months of use of the OnKO-TnT application after 6 months of use of the OnKO-TnT application MAUQ questionnaire of 21 items with a score ranging from 1 to 7. Score 7 means a better result
- Secondary Outcome Measures
Name Time Method
Trial Locations
- Locations (1)
Service Pédiatrie Onco-hématologie - Pédiatrie III - CHU de Strasbourg - France
🇫🇷Strasbourg, France