Using Twitter to Enhance the Social Support of Hispanic and Black Dementia Caregivers
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 966
- 试验地点
- 1
- 主要终点
- Number of Participants Who do Not Engage in Twitter Activities
研究概览
简要总结
The prevalence of dementia is higher in Hispanics and African Americans than non-Hispanic Whites. Moreover, dementia caregivers often experience loneliness as well decreased health status. The expansion of social media use among Hispanics and African Americans, particularly Twitter - a short message service - offers great promise for improving social support. This study aims to evaluate changes of discussion topics, sentiment and networking styles (i.e., number of followers) among anonymous followers of our two Twitter networks; the African American/Black dementia caregiver group and the Hispanic dementia caregiver group.
详细描述
The study will utilize Twitter networks to post a daily message for dementia caregivers for a year, and set up a monthly group chat.
研究设计
- 研究类型
- Interventional
- 分配方式
- Non Randomized
- 干预模型
- Parallel
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •18 years of age or older
- •Black or Hispanic, living in the U.S. including the U.S. territories
- •a dementia caregiver with any duration, able to speak English or Spanish/bilingual
- •must agree to terms of conditions of use and privacy policy and rules of one of the two dementia caregiver network (Hispanic @dcnh, Black @dcnaab), the Twitter user agreement of the terms of service, Twitter privacy policy and Twitter rules including intellectual property, violence, misconduct, abuse behavior, private information and spam and security
- •use a smartphone or a feature phone (i.e., a cell phone with text messaging)
排除标准
- •do not have de-identified Twitter account, children, not a dementia family caregiver
结局指标
主要结局
Number of Participants Who do Not Engage in Twitter Activities
时间窗: 12 months
Macro level: The number of participants who do not engage in Twitter activities (i.e., retweet, reply, like, post) within the Twitter network for dementia caregivers
Emotional Valence Score
时间窗: 12 months
Emotional valence (macro level) detected from text data (e.g., "This is so helpful": emotion score +4; "I am sad": emotion score -6). Emotional valence score ranges from -10 to +10; -10 indicates negative valence and +10 indicates positive valence.
次要结局
- Number of Auto-detected Small Groups(12 months)
- Percentage of Balanced Triads(12 months)
研究者
Sunmoo Yoon
Associate Research Scientist
Columbia University