Evaluation of Academic and Professional Trajectories of Narcoleptic Patients
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 149
- 试验地点
- 1
- 主要终点
- Occupational situations
研究概览
简要总结
Narcolepsy is a chronic, disabling condition characterized by excessive daytime sleepiness and, in some patients, falls in muscle tone related to emotions (cataplexies). It often begins in childhood or in young adults. Symptoms of narcolepsy are responsible for an important handicap in everyday life, and are often misunderstood by the family and professional environment. In addition, many comorbidities are associated with narcolepsy, such as depression, anxiety, or obesity.
Few studies have examined the impact of narcolepsy on patients' educational background, socio-professional integration, and quality of life. In particular, the factors of professional handicap related to the characteristics of the disease and the determinants of the insertion of the patients remain poorly known.
As a better understanding of these determinants could help to inform patients and guide them in their choices, NARCOWORK study aims at evaluating the academic and professional trajectories of a wide population of narcoleptic patients.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Control
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Group "Narcoleptic Patients":
- •Type 1 or Type 2 narcolepsy
- •> 18 years
- •Usually followed at the Lyon Sleep Medicine Center
- •Group "Control":
- •At least one member of each family of cases (siblings, cousins ...)
- •> 18 years and of the same age as the case if possible (+/- 5 years)
- •No narcolepsy
排除标准
- •uncertain diagnosis (for the "Narcoleptic Patients" Group)
- •poor knowledge of the French language
- •Refusal to participate
结局指标
主要结局
Occupational situations
时间窗: 30 to 45 minutes
Participants will have to complete questionnaires to compare the distribution of occupational situations subjects (worker, unemployed, student, retired, housewife) in narcoleptic patients and matched non-narcoleptic subjects (controls)
次要结局
未报告次要终点