MedPath

Specialized Treatment, Rehabilitation and Outcome in Patients With Prolonged Critical Illness

Recruiting
Conditions
Critical Illness
Registration Number
NCT04247607
Lead Sponsor
Remeo AB
Brief Summary

This prospective observational study aims to describe the outcome for patients with persistent or chronic critical illness treated at Remeo, a clinic specialized for patients in need of prolonged intensive care and intensive care rehabilitation in Sweden. Patients' disease characteristics and the treatment in multidisciplinary patient centered teams for intensive care, weaning from mechanical ventilation and simultaneous rehabilitation will be described. Patients will be followed one year after discharge to document health related quality of life, physical function, frailty, mental illness and used health care resources.

Detailed Description

Not available

Recruitment & Eligibility

Status
RECRUITING
Sex
All
Target Recruitment
250
Inclusion Criteria

Admission to unit (Remeo, Stockholm, Sweden) Treated for prolonged critical illness

Exclusion Criteria

Treated less than 48 hours at unit (Remeo, Stockholm, Sweden)

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Change in mechanical ventilation statusAssessed at admittance and immediately after discharge from unit

Time (Days) from admittance to unit until weaned from mechanical ventilation

In-patient mortality and mortalityAssessed immediately after discharge from unit

Mortality during care at unit

Mortality during 12 months follow-up after dischargeAssessed 12 months after discharge

Mortality during 12 months follow-up after discharge

Health related quality of Life assessed by the Rand 36-Item Health Survey (RAND36)12 months after discharge from unit

RAND36 (scale 0-100, higher value better) questionnaire

Health related quality of Life assessed by EuroQoL 5-dimension 5-level (EQ-5D-5L)12 months after discharge from unit

EQ-5D-5L questionnaire

Change in tracheostomy statusAssessed at admittance and immediately after discharge from unit

Time (Days) from admittance to unit until decannulation

Independence in activities of daily living assessed by Katz Index of Independence in Activities of Daily Living (Katz ADL)12 months after discharge from unit

Katz ADL (scale 0-6, higher value better)

Secondary Outcome Measures
NameTimeMethod
Symptoms of depression as assessed by the Patient Health Questionnaire-9 (PHQ-9)12 months after discharge from unit

PHQ-9, a patient related outcome questionnaire, scale 0-27, higher value indicating more severe symptoms

Symptoms of generalized anxiety as assessed by the General anxiety disorder 7 (GAD-7) questionnaire12 months after discharge from unit

GAD-7, a patient related outcome questionnaire, scale 0-21, higher value indicating more severe symptoms

Swallowing function and possibility of oral intakeAt at 12 months after discharge from unit

Using the Functional oral intake scale (FOIS), seven different levels 1-7, higher level indicate better function

Frailty as assessed by the Clinical frailty scale (CFS)At 12 months after discharge from unit

The Clinical frailty scale has 9 levels from very fit to terminally ill (1-9, lower value indicate better outcome)

Physical status as assessed by the 6 minutes walk test12 months after discharge from unit

The 6 min walk test evaluated by a physiotherapist (longer distance (meters) better outcome)

Physical status as assessed by the Chelsea Critical Care Physical Assessment tool (CPAx).12 months after discharge from unit

CPAx performed by a physiotherapist (scale 0-50 Points, higher value indicate better outcome)

Cognitive status as assessed by the Montreal cognitive assessment (MoCa) testImmediately before discharge from unit

Performed by an occupational therapist. The MoCa test score scale is 0-30 Points, higher value indicate better outcome

Inflammatory status relative to outcomeThrough study completion, an average of 14 months

HMGB1 and routine inflammation markers' effect on outcome measures

Trial Locations

Locations (1)

Remeo

🇸🇪

Sköndal, Stockholm, Sweden

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