*Health-related quality of life in high-grade glioma patients and their partners in the end-of-life phase: a retrospective multi-centre analysis*

Recruiting

• Conditions: 10029211; malignant brain tumour; malignant glioma

• Registration Number: NL-OMON32132
• Lead Sponsor: Vrije Universiteit Medisch Centrum

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 6 May 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: Not specified
• Target Recruitment: 200

Inclusion Criteria

relatives of deceased high grade glioma patients >18 yrs at time of diagnosis, diagnosed in 2005 and 2006

Exclusion Criteria

all patients who did not (yet) die or whose dead was not retraceable

Study & Design

• Study Type: Observational non invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>Clinical data from medical records in the corresponding hospitals; data from<br /><br>medical records of primary care physicians. Data from questionnaires sent to<br /><br>general practitioners, relatives and other caregivers. Data collected from<br /><br>interviews with relatives of HGG patients, general practitioners, and other<br /><br>caregivers.</p><br>

Secondary Outcome Measures

Name	Time	Method
<p>The information about the end-of-life phase in HGG patients and potential<br /><br>shortcomings obtained in this pilot study, will be used to design a<br /><br>prospective, nation-wide study in the future in which we attempt to improve the<br /><br>end-of-life care for the patients and their relatives.<br /><br>Data obtained can also be translated into improved guidelines for the<br /><br>caregivers of HGG patients. </p><br>