Life Quality Study for PFAPA Patient
Completed
- Conditions
- PFAPA Syndrome
- Registration Number
- NCT02811705
- Lead Sponsor
- Versailles Hospital
- Brief Summary
This cohort study aims to assess the quality of life (or welfare) related to the health of children and adolescents with an non genetics auto-inflammatory disease PFAPA or Marshall syndrome to compare it to children or adolescents with recurrent fever genetics of Familial Mediterranean fever (FMF) in order to improve their overall care.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 60
Inclusion Criteria
- PFAPA syndrome patients or FMF patients
Exclusion Criteria
- Participation refusal
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Compare quality of life from patients with PFAPA and FMF, reported by parents and by patients themselves 1 day
- Secondary Outcome Measures
Name Time Method Evaluate the fatigue status of patients through questionnaire PedsQL TM 3.0 multidimensional scale tiredness 1 day
Trial Locations
- Locations (2)
Centre hospitalier de Versailles
🇫🇷Le Chesnay, France
CH de Bicètre
🇫🇷Paris, France
Centre hospitalier de Versailles🇫🇷Le Chesnay, France