Discharge from palliative care study

Not Applicable

Conditions: Palliative care
Not Applicable

Registration Number: ISRCTN18098027

Lead Sponsor: niversity of Birmingham

Brief Summary: 2024 Protocol article in https://pubmed.ncbi.nlm.nih.gov/38902635/ (added 21/06/2024)

Detailed Description: Not available

Recruitment & Eligibility

Status: Ongoing

Sex: All

Target Recruitment: 45

Inclusion Criteria

Inclusion criteria for patients and carers:
1. Adult (18+ years old) patients or carers for patients discharged to primary care from a participating specialist palliative care facility at a hospital or hospice following an episode of care
2. Discharge event no longer than two weeks ago at the time of participant screening and selection for the study

Inclusion criteria for primary care healthcare professional interviews:
Working in a participating General Practice team (including associated community nursing) and receiving and/or acting upon discharge communications. This may include, but not be limited to, General Practitioners, Nurse Practitioners, and District Nurses.

Exclusion Criteria

Exclusion criteria (all):
1. Children (those aged <18 years old)
2. Patients who are deemed by their care team or treating clinician as lacking the capacity to provide informed consent to participate in the study (e.g. Alzheimer’s) or are otherwise deemed unsuitable for study participation
3. Patients discharged to providers or units other than primary care (e.g. discharge to secondary care)
4. Persons who have expressed a prior wish not to participate in research
5. Bereaved carers (<6 months ago)
6. Healthcare professional who has worked for less than one month in Primary Care

Study & Design

Study Type: Observational

Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Patient, carer, and healthcare professional experiences are measured using qualitative semi-structured interviews conducted over the duration of approximately 1 hour

Secondary Outcome Measures