Social care for people living with young onset dementia: the DYNAMIC study

Not Applicable

• Conditions: Social care for people living with young onset dementia and their families; Mental and Behavioural Disorders

• Registration Number: ISRCTN10653250
• Lead Sponsor: niversity of Bradford

Brief Summary

2024 Protocol article in https://pubmed.ncbi.nlm.nih.gov/38315704/ (added 06/02/2024)

Detailed Description

Not available

Study Timeline

• Study Start: 2023-12-12
• Last Update Posted: 15 July 2024
• Study Completion: 2025-10-17

Recruitment & Eligibility

• Status: Ongoing
• Sex: All
• Target Recruitment: 173

Inclusion Criteria

Work package 1 participants will be people with YOD and main supporters:
1. Living in England.
2. Diagnosed with YOD or a relative, friend or neighbour of someone diagnosed with YOD
3. Living alone or with others

Work package 2 participants will be staff with a role in or awareness of adult/older adult social care planning, provision, management or commissioning, including but not limited to:
1. Local authority social workers
2. Local authority community OTs
3. Local authority social services commissioners, managers and coordinators
4. Social prescribers from third sector and primary care organisations
5. Staff from third-sector organisations that provide community and/or residential services, e.g., dementia navigators or link workers, Young Onset Dementia Advisors, support group facilitators
6. Staff from private providers e.g. home carers, personal assistants, care home staff and managers

Exclusion Criteria

People with young onset dementia will be excluded if:
1. They are diagnosed with dementia caused by HIV, traumatic brain injury, Down’s syndrome, Huntington’s chorea or alcohol-related dementia
2. They are unable to communicate or lack capacity to consent to take part

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Experiences of social care for young onset dementia and areas for improvement established through thematic analysis and descriptive data measured by interview at a single time point

Secondary Outcome Measures

Name	Time	Method
There are no secondary outcome measures