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Clinical Trials/ISRCTN18098027
ISRCTN18098027
Active, Not Recruiting
N/A

Improving patients’, carers’ and primary care healthcare professionals’ experiences of discharge communication from specialist palliative care to community settings: a qualitative interview study

niversity of Birmingham0 sites45 target enrollmentDecember 29, 2023

Overview

Phase
N/A
Intervention
Not specified
Conditions
Palliative care
Sponsor
niversity of Birmingham
Enrollment
45
Status
Active, Not Recruiting
Last Updated
last year

Overview

Brief Summary

2024 Protocol article in https://pubmed.ncbi.nlm.nih.gov/38902635/ (added 21/06/2024)

Registry
who.int
Start Date
December 29, 2023
End Date
March 31, 2025
Last Updated
last year
Study Type
Observational
Sex
All

Investigators

Eligibility Criteria

Inclusion Criteria

  • Inclusion criteria for patients and carers:
  • 1\. Adult (18\+ years old) patients or carers for patients discharged to primary care from a participating specialist palliative care facility at a hospital or hospice following an episode of care
  • 2\. Discharge event no longer than two weeks ago at the time of participant screening and selection for the study
  • Inclusion criteria for primary care healthcare professional interviews:
  • Working in a participating General Practice team (including associated community nursing) and receiving and/or acting upon discharge communications. This may include, but not be limited to, General Practitioners, Nurse Practitioners, and District Nurses.

Exclusion Criteria

  • Exclusion criteria (all):
  • 1\. Children (those aged \<18 years old)
  • 2\. Patients who are deemed by their care team or treating clinician as lacking the capacity to provide informed consent to participate in the study (e.g. Alzheimer’s) or are otherwise deemed unsuitable for study participation
  • 3\. Patients discharged to providers or units other than primary care (e.g. discharge to secondary care)
  • 4\. Persons who have expressed a prior wish not to participate in research
  • 5\. Bereaved carers (\<6 months ago)
  • 6\. Healthcare professional who has worked for less than one month in Primary Care

Outcomes

Primary Outcomes

Not specified

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