Social care planning and provision for people with young onset dementia and their families: current practice and resources for improvement

niversity of Bradford0 个研究点目标入组 173 人开始时间: 2023年12月12日最近更新: 2024年7月15日

试验速览

2024 Protocol article in https://pubmed.ncbi.nlm.nih.gov/38315704/ (added 06/02/2024)

•Work package 1 participants will be people with YOD and main supporters:
•1. Living in England.
•2. Diagnosed with YOD or a relative, friend or neighbour of someone diagnosed with YOD
•3. Living alone or with others
•Work package 2 participants will be staff with a role in or awareness of adult/older adult social care planning, provision, management or commissioning, including but not limited to:
•1. Local authority social workers
•2. Local authority community OTs
•3. Local authority social services commissioners, managers and coordinators
•4. Social prescribers from third sector and primary care organisations
•5. Staff from third-sector organisations that provide community and/or residential services, e.g., dementia navigators or link workers, Young Onset Dementia Advisors, support group facilitators
•6. Staff from private providers e.g. home carers, personal assistants, care home staff and managers

•People with young onset dementia will be excluded if:
•1. They are diagnosed with dementia caused by HIV, traumatic brain injury, Down’s syndrome, Huntington’s chorea or alcohol-related dementia
•2. They are unable to communicate or lack capacity to consent to take part

发起方

niversity of Bradford