ISRCTN10653250
Active, not recruiting
未知
Social care planning and provision for people with young onset dementia and their families: current practice and resources for improvement
niversity of Bradford0 sites173 target enrollmentDecember 12, 2023
Overview
- Phase
- 未知
- Intervention
- Not specified
- Conditions
- Not specified
- Sponsor
- niversity of Bradford
- Enrollment
- 173
- Status
- Active, not recruiting
- Last Updated
- last year
Overview
Brief Summary
2024 Protocol article in https://pubmed.ncbi.nlm.nih.gov/38315704/ (added 06/02/2024)
Investigators
Eligibility Criteria
Inclusion Criteria
- •Work package 1 participants will be people with YOD and main supporters:
- •1\. Living in England.
- •2\. Diagnosed with YOD or a relative, friend or neighbour of someone diagnosed with YOD
- •3\. Living alone or with others
- •Work package 2 participants will be staff with a role in or awareness of adult/older adult social care planning, provision, management or commissioning, including but not limited to:
- •1\. Local authority social workers
- •2\. Local authority community OTs
- •3\. Local authority social services commissioners, managers and coordinators
- •4\. Social prescribers from third sector and primary care organisations
- •5\. Staff from third\-sector organisations that provide community and/or residential services, e.g., dementia navigators or link workers, Young Onset Dementia Advisors, support group facilitators
Exclusion Criteria
- •People with young onset dementia will be excluded if:
- •1\. They are diagnosed with dementia caused by HIV, traumatic brain injury, Down’s syndrome, Huntington’s chorea or alcohol\-related dementia
- •2\. They are unable to communicate or lack capacity to consent to take part
Outcomes
Primary Outcomes
Not specified
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