Questionnaire and interview study with parents of children with congenital abnormalities

Completed

• Conditions: aangeboren afwijkingen op het gebied van neonatologie, nefrologie, metabole ziekten, neurologie, endocrine ziekten, en urologie; congenital disorders

• Registration Number: NL-OMON45842
• Lead Sponsor: Radboud Universitair Medisch Centrum

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 15 April 2024

Recruitment & Eligibility

• Status: Completed
• Sex: Not specified
• Target Recruitment: 48

Inclusion Criteria

- Parents of children with a congenital defect (nephrology, metabolic diseases, neurology, endocrine diseases, and urology)
- Diagnosis in the past year
- Good knowledge of the Dutch language

Exclusion Criteria

- Parents of children who are being treated palliative

Study & Design

• Study Type: Observational non invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>Outcomes LTO<br /><br>Outcomes semi-structured interviews</p><br>

Secondary Outcome Measures

Name	Time	Method
<p>N/a</p><br>