Assessment of Nutritional and Growth Status in Rett Syndrome Patients
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 70
- 主要终点
- Change in Body height
研究概览
简要总结
Children with Rett syndrome are in a period of rapid growth, and proper and appropriate nutritional support is very important. Past foreign research papers it has been pointed out that most of these patients have feeding difficulties, dysphagia, and digestive tract abnormalities, are often constipated, and may suffer from osteoporosis and other problems. Lack of proper nutritional support will seriously affect their growth, development and health. in view of There is a lack of relevant research in China, so the investigators would like to use this research to explore the nutritional, growth and postural status of Rett's disease patients, as the reference direction and goal of dietary adjustment and nutritional support for patients, and establish dietary and nutritional strategies for sick children in Taiwan.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Retrospective
入排标准
- 年龄范围
- 1 Year 至 18 Years(Child, Adult)
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Rett syndrome patient.
排除标准
- •Not Rett syndrome patient.
结局指标
主要结局
Change in Body height
时间窗: 1 year
The growth status of the case will be assessed
Change in Body weight
时间窗: 1 year
The growth status of the case will be assessed
Change in arms height
时间窗: 1 year
The growth status of the case will be assessed and growth curve
Change in hip circumferences
时间窗: 1 year
The growth status of the case will be assessed
Change in waist
时间窗: 1 year
The growth status of the case will be assessed
Change in knee height
时间窗: 1 year
The growth status of the case will be assessed
gender, age , disease history checklist
时间窗: 1 year
次要结局
未报告次要终点
