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临床试验/NCT06335368
NCT06335368已完成不适用

Assessment of Nutritional and Growth Status in Rett Syndrome Patients

National Taiwan University Hospital0 个研究点目标入组 70 人开始时间: 2016年3月9日最近更新:
适应症

试验速览

阶段
不适用
状态
已完成
入组人数
70
主要终点
Change in Body height

研究概览

简要总结

Children with Rett syndrome are in a period of rapid growth, and proper and appropriate nutritional support is very important. Past foreign research papers it has been pointed out that most of these patients have feeding difficulties, dysphagia, and digestive tract abnormalities, are often constipated, and may suffer from osteoporosis and other problems. Lack of proper nutritional support will seriously affect their growth, development and health. in view of There is a lack of relevant research in China, so the investigators would like to use this research to explore the nutritional, growth and postural status of Rett's disease patients, as the reference direction and goal of dietary adjustment and nutritional support for patients, and establish dietary and nutritional strategies for sick children in Taiwan.

研究设计

研究类型
Observational
观察模型
Case Only
时间视角
Retrospective

入排标准

年龄范围
1 Year 至 18 Years(Child, Adult)
性别
All
接受健康志愿者

入选标准

  • Rett syndrome patient.

排除标准

  • Not Rett syndrome patient.

结局指标

主要结局

Change in Body height

时间窗: 1 year

The growth status of the case will be assessed

Change in Body weight

时间窗: 1 year

The growth status of the case will be assessed

Change in arms height

时间窗: 1 year

The growth status of the case will be assessed and growth curve

Change in hip circumferences

时间窗: 1 year

The growth status of the case will be assessed

Change in waist

时间窗: 1 year

The growth status of the case will be assessed

Change in knee height

时间窗: 1 year

The growth status of the case will be assessed

gender, age , disease history checklist

时间窗: 1 year

次要结局

未报告次要终点

研究者

申办方类型
Other
责任方
Sponsor

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