Mapping and evaluating services for children with learning disabilities and behaviours that challenge

Not Applicable

• Conditions: Children with learning disabilities and behaviours that challenge; Mental and Behavioural Disorders

• Registration Number: ISRCTN88920546
• Lead Sponsor: niversity of Warwick

Brief Summary

2023 Other publications in https://pubmed.ncbi.nlm.nih.gov/38049861/ (added 05/12/2023)

Detailed Description

Not available

Study Timeline

• Study Start: 2022-07-05
• Last Update Posted: 27 May 2024
• Study Completion: 2025-09-30

Recruitment & Eligibility

• Status: Ongoing
• Sex: All
• Target Recruitment: 524

Inclusion Criteria

The inclusion criteria for services are:
1. They were a service included in the analysis for Stage 1 of the MELD study
2. Nothing significant has changed in their service model since the Stage 1 analysis

The inclusion criteria for children referred/referred to services included in Stage 2 of the MELD Study are:
1. Child (0-15 years of age) has learning disabilities as defined administratively or otherwise by the service
2. Child has been referred at least in part for support in relation to behaviours that challenge (including those referred to the relevant learning disability/behaviours that challenge pathway in any broader service)
3. Child’s parental caregiver consents to take part in the research
4. Child’s parental caregiver is able to complete, by questionnaire or interview with a researcher, study outcome measures in English

For the case studies, children and young people who will be interviewed will be between 6 and 15 years of age. Consent from their parental caregiver will be obtained before they take part.

Exclusion Criteria

The exclusion criteria for services are:
1. Services that have been established for less than one year, and so have had little chance to become reasonably stable within the current study timeframe
2. Services that have a typical referral/re-referral rate over 6 months of fewer than 10 children
3. Services that indicate at Stage 1 of the MELD Study they would not wish to be contacted about involvement in Stage 2
4. Co-applicants Lovell and Liew’s services – to address potential conflicts of interest

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Child-related outcomes (all completed by family carers):<br>Child behaviours that challenge measured using the Behaviour Problems Inventory Short Form (BPI-S) at baseline and 12 months post-referral