Effectiveness of Parental Empowerment Programme on parental knowledge, parenting stress and their coping strategies, symptom burden and quality of life of children with cancer receiving palliative care
- Conditions
- Health Condition 1: C00-D49- Neoplasms
- Registration Number
- CTRI/2020/11/029163
- Lead Sponsor
- Dr Rakesh Garg
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- Not specified
- Target Recruitment
- 120
1 Parent (s) and their Child with biopsy proven diagnosis of cancer.
2 Age of child -8-12 years & cancer diagnosed within 6 months.
3 Parent gives written consent and child gives assent for participation in the study.
4 One of the parent should have access to Android based smartphone (To install Application) and should be able to read and understand Hindi or English
1 Time to diagnosis is > 6 months
2 Child requires intensive care
3 Any associated major illness in child such as chronic renal failure, heart disease etc.
4 Parents are not able to read and understand Hindi/English
5 Child/Parent not willing to participate in the study or not meeting inclusion criteria
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Parenting stress among parents of children with cancer receiving palliative care.Timepoint: Baseline <br/ ><br>1 month <br/ ><br>3 month
- Secondary Outcome Measures
Name Time Method Parental Knowledge and Coping strategies among parents of children with cancer receiving palliative care. <br/ ><br>Timepoint: Baseline <br/ ><br>1 month <br/ ><br>3 month;Symptom burden and Quality of life among children with cancer receiving palliative care.Timepoint: Baseline <br/ ><br>1 month <br/ ><br>3 month