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Effectiveness of Parental Empowerment Programme on parental knowledge, parenting stress and their coping strategies, symptom burden and quality of life of children with cancer receiving palliative care

Not Applicable
Completed
Conditions
Health Condition 1: C00-D49- Neoplasms
Registration Number
CTRI/2020/11/029163
Lead Sponsor
Dr Rakesh Garg
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
Completed
Sex
Not specified
Target Recruitment
120
Inclusion Criteria

1 Parent (s) and their Child with biopsy proven diagnosis of cancer.

2 Age of child -8-12 years & cancer diagnosed within 6 months.

3 Parent gives written consent and child gives assent for participation in the study.

4 One of the parent should have access to Android based smartphone (To install Application) and should be able to read and understand Hindi or English

Exclusion Criteria

1 Time to diagnosis is > 6 months

2 Child requires intensive care

3 Any associated major illness in child such as chronic renal failure, heart disease etc.

4 Parents are not able to read and understand Hindi/English

5 Child/Parent not willing to participate in the study or not meeting inclusion criteria

Study & Design

Study Type
Interventional
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Parenting stress among parents of children with cancer receiving palliative care.Timepoint: Baseline <br/ ><br>1 month <br/ ><br>3 month
Secondary Outcome Measures
NameTimeMethod
Parental Knowledge and Coping strategies among parents of children with cancer receiving palliative care. <br/ ><br>Timepoint: Baseline <br/ ><br>1 month <br/ ><br>3 month;Symptom burden and Quality of life among children with cancer receiving palliative care.Timepoint: Baseline <br/ ><br>1 month <br/ ><br>3 month
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