Testing Criteria for Convening Family Care Conferences in the Pediatric Intensive Care Unit

Multidisciplinary experts from two Pediatric Intensive Care Units (PICUs) used an iterative modified Delphi process to develop and refine criteria for determining PICU patients for whom a family care conference would be beneficial. A preliminary set of criteria were developed with expert input and review of the literature. The investigators then assessed the preliminary criteria by retrospectively reviewing PICU patient's medical records at the two participating sites. Making revisions as needed the investigators then assessed the reliability of the family care conference criteria by prospectively reviewing the medical records of two months of PICU patient admissions at both participating sites. Based on these efforts, the investigators have described a set of family care conference criteria that will be studied in this investigation.

Primary Aim: Assess the inclusivity of the developed Family care conference criteria (FCC).

Secondary Aim: Describe parents' views of PICU family care conferences (FCC) and factors associated with having PICU family care conferences.

Methods: Taking an implementation science approach, the investigators will use plan-do-study-act cycles to optimize the goal of offering an FCC to all parent(s) of patients with any FCC criteria. The implementation aim statement is, within 6 months, healthcare team members will offer an FCC to the parent(s) of >95% of patients who have at least one FCC criteria.

• Planning (Plan). Development teams at participating institutions have determined how to inform PICU healthcare team members (HTMs) when a patient has an FCC criterion. A one-page information sheet (written at a 6th-grade level) describing FCCs, their potential role and value will be used when offering families a FCC. The development teams have also created an electronic health record (EHR) note template to document offering and conducting FCCs.
• Implementation (Do). Each weekday, a study team member at each site will review the EHR to identify patients who have one FCC criteria. A study team member will inform the PICU team when a patient has at least one FCC criteria and request that an HTM give the parent(s) the FCC information sheet, offer the parent(s) an FCC, and document the conversation with the parent(s) in the EHR. The processes for organizing and conducting FCCs will occur according to the PICU teams' discretion.
• Data collection (Study). The investigators will track the occurrence of FCCs by reviewing the EHR and obtaining input from PICU HTMs. For patients meeting at least one FCC criteria, but for whom an FCC was not documented, a study team member will ask the patient's PICU team (either resident, fellow, APRN, or attending) if an FCC occurred while the patient was admitted. For patients meeting FCC criteria, but for whom an FCC did not occur, study team members will also document if an FCC was offered by reviewing the EHR. If there is no EHR documentation about offering parent(s) an FCC, a study team member will ask the patient's PICU team (within a week of informing them that a patient met an FCC criteria) if the parent(s) were offered an FCC and if not why the parent(s) were not offered and FCC. Using input from HTMs, the investigators will record reasons for not offering an FCC and ascertain why parents opted out of an FCC. In addition to data about the FCC criteria, the investigators will extract the follow patient data from the EHR: age; sex; Pediatric Index of Mortality 3 (PIM3) score (measures of PICU admission illness severity) indication for PICU admission; need for intubation; need for pressors/vasoactive medications; number of subspecialty teams consulted; and use of ECMO.
• Revise implementation plan (Act). The development teams will meet every other week x 4, then monthly x 4, then every two months to review the data, assess implementation, and modify the process as needed.